AI Article Synopsis

  • The study aimed to investigate how patient association members and health care professionals collaborate in a network focused on enhancing cancer care.
  • Participants provided feedback after 1 and 3 years, which was analyzed to identify key themes, including the effects of network processes, learning experiences, innovation in care, and the influence of patients' personal cancer journeys.
  • The findings highlight the significance of collaboration between patients and health care professionals, suggesting that understanding differing expectations can improve future collaborations in cancer care development.

Article Abstract

Objective: The aim of this study was to explore how members of patient associations (PACPs) and health care professionals (HCPs) experience collaboration in a network initiated by the health care system and aimed at improving cancer care.

Methods: The participants were asked to describe, after 1 and 3 years, their experiences of collaboration. Data collected were in the form of a written answer to a single, open-ended question, and the answers were analysed using inductive content analysis.

Results: The analysis revealed four themes: the impact of processes that occur within the network, the impact of learning, the impact of innovation and development in cancer care, and the impact of PACP members' personal cancer experience. Statements about the impact of the processes that occur within the network dominated at both occasions.

Conclusion: This study of experiences of collaboration provides new data on the importance ascribed to such efforts between patients in an organised association and HCPs.

Practice Implications: We suggest that differences in perceptions and expectations should be taken into account in future collaborations between representatives of patient associations and of health care systems in order to reach out and to influence developments in cancer care.

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Source
http://dx.doi.org/10.1016/j.pec.2005.02.008DOI Listing

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