This is the first of three articles which consider the holistic care required by children with a disability and their families. Although the articles mainly address care of children with disabilities in the acute hospital setting, the concepts and knowledge can be transferred to care in other settings. The articles aim to provide a summary of the main subject areas while prompting readers to revisit their own opinions and experiences. This article provides an overview of: commonly used terminolgy; receiving the news that your child has a disability; impact on family members; and relevant social policy. The second and third articles cover: the therapeutic use of self; the value of communication; meeting complex needs on a paediatric ward and multi-diciplinary working.
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http://dx.doi.org/10.7748/paed2005.12.17.10.37.c983 | DOI Listing |
BMC Public Health
January 2025
Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, USA.
Background: Low back pain (LBP) is a leading cause of years lived with disability. However, the association of non-chronic LBP with levels of daily physical activity (PA) remains poorly explored. This study investigated the association between previous and current non-chronic LBP with daily PA and compliance with PA recommendations in middle and older-aged adults.
View Article and Find Full Text PDFBMC Pediatr
January 2025
Institute of Neurodevelopment, Cognition, and Inclusive Education (INCEI), Ribeirão das Neves, Belo Horizonte, MG, Brazil.
Background: Understanding the priorities of parents of children and adolescents with autism spectrum disorder (ASD) is crucial for implementing evidence-based programs. This study aims to identify the functional priorities of parents of Brazilian children and adolescents with ASD, analyze variations in priorities according to the levels of support and age groups of the participants, and categorize the goals according to the categories of the International Classification of Functioning, Disability, and Health (ICF). Additionally, this study aimed to evaluate changes in parents' performance and satisfaction with functional priorities after intervention with the Global Integration Method (Métodode Integração Global - MIG).
View Article and Find Full Text PDFBMC Geriatr
January 2025
IRCCS - INRCA National Institute of Health & Science on Aging, Centre for Socio-Economic Research on Aging, Ancona, Italy.
Background: Loneliness and social isolation can occur at any stage of life, but some predictors may be more common among older adults. Due to growing population ageing, loneliness and social isolation are relevant social issues. Many studies apply the main definitions of loneliness and social isolation offered by the literature without considering how individual representations, socio-cultural context and the culture of care may influence their perception.
View Article and Find Full Text PDFHealth Promot Pract
January 2025
Colorado School of Public Health, Aurora, CO, USA.
In this commentary, we, a recent Master of Public Health (MPH) graduate with hearing loss and a course instructor, share what we learned about classroom accessibility while participating in a semester-long qualitative research methods course offered during the COVID-19 pandemic. We complement our reflections on working together with findings from a student field project focused on the lived classroom experiences of graduate students with hearing loss. The field project revealed that students adapted to increased communication challenges in their learning environments without requesting official accommodations due to stigma and a desire to limit their burden on others.
View Article and Find Full Text PDFContemp Clin Trials
January 2025
Johns Hopkins School of Nursing, Baltimore, MD, United States of America.
Background: Women aging with disabilities experience higher rates of chronic pain and co-occurring depressive symptoms than women without disabilities and men with and without disabilities. Pain and depression can exacerbate the inability to fulfill social roles and complete activities of daily living among women with disabilities. Although there are existing interventions for both pain and depressive symptoms, few interventions have been developed with women aging with disabilities that address both chronic pain and depressive symptoms.
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