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http://dx.doi.org/10.1055/s-2005-836888 | DOI Listing |
Pediatrics
November 2024
Department of Pediatrics, Rush University Medical Center, Chicago, Illinois; and Cook County Sudden Unexpected Infant Death Case Registry, Chicago, Illinois.
Sudden unexpected infant death (SUID) is a major contributor to infant death and a persistent public health issue. After an initial decline after the 1994 "Back to Sleep" campaign, SUID numbers plateaued. Currently, ∼10 infants die suddenly and unexpectedly each day in the United States.
View Article and Find Full Text PDFQual Health Res
September 2024
The Research Group for Nursing- and Healthcare Science, Stavanger University Hospital, Stavanger, Norway.
When an infant dies in a neonatal intensive care unit in Norway, healthcare professionals provide bereaved parents with objects intended to help them processing their loss. Such objects can be clothes, blankets, soft animal toys, hand- and footprints, hair, as well as scrapbooks where the short life is documented through text and photo. By interviewing bereaved parents in three focus groups, we investigated the parents' use of these objects.
View Article and Find Full Text PDFNeurocrit Care
December 2024
Department of Pediatric Palliative Care, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Pediatric neurocritical care teams care for patients and families facing the potential for significant neurologic impairment and high mortality. Such admissions are often marked by significant prognostic uncertainty, high levels of parental emotional overload, and multiple potentially life-altering decision points. In addition to clinical acumen, families desire clear and consistent communication, supported decision-making, a multidisciplinary approach to psychosocial supports throughout an admission, and comprehensive bereavement support after a death.
View Article and Find Full Text PDFInt J Legal Med
September 2024
Department of Medical, Surgical and Advanced Technologies "G.F. Ingrassia", University of Catania, Catania, 95121, Italy.
Sudden unexpected postnatal collapse (SUPC) is a sudden collapse of the clinical conditions of a full-term or near-term newborn, within the first 7 days of life, that requires resuscitation with positive ventilation and who either dies, has hypoxic-ischemic encephalopathy, or requires intensive care. The incidence of SUPC is very low, and most often presents a negative prognosis. The BUB1B gene is a mitotic checkpoint of serine/threonine kinase B that encodes a protein crucial for maintaining the correct number of chromosomes during cell division.
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