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Disability or Death: A Focused Review of Informed Consent in Pediatric Neurosurgery.
Semin Pediatr Neurol
April 2023
Department of Neurological Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL; Division of Pediatric Neurosurgery, Ann & Robert H. Lurie Children's Hospital, Chicago, IL. Electronic address:
The management of pediatric neurosurgical disease often requires families to choose between long-term disability and premature death. This decision-making is codified by informed consent. In practice, decision-making is heavily weighted toward intervening to prevent death, often with less consideration of the realities of long-term disability.
View Article and Find Full Text PDFFactors influencing utilization of cancer rehabilitation services among older breast cancer survivors in the USA: a qualitative study.
Support Care Cancer
March 2022
Department of Occupational Therapy, University of Pittsburgh, Pittsburgh, PA, USA.
Purpose: Many older breast cancer survivors experience long-term disability due to cancer and cancer-related treatments. However, less than 20% of older breast cancer survivors utilize cancer rehabilitation services to address cancer-related disability. Further understanding of survivor experiences may reveal strategies to improve uptake cancer rehabilitation services in the USA.
View Article and Find Full Text PDFPediatric Ethics and Communication Excellence (PEACE) Rounds: Decreasing Moral Distress and Patient Length of Stay in the PICU.
HEC Forum
March 2017
Section of Pediatric Critical Care, Indiana University School of Medicine, Indianapolis, IN, USA.
This paper describes a practice innovation: the addition of formal weekly discussions of patients with prolonged PICU stay to reduce healthcare providers' moral distress and decrease length of stay for patients with life-threatening illnesses. We evaluated the innovation using a pre/post intervention design measuring provider moral distress and comparing patient outcomes using retrospective historical controls. Physicians and nurses on staff in our pediatric intensive care unit in a quaternary care children's hospital participated in the evaluation.
View Article and Find Full Text PDFNegative freedom and death in the United States.
Am J Public Health
November 2010
Department of Community Health and Sustainability, University of Massachusetts Lowell, Lowell, MA 01854, USA.
Personal freedoms have been characterized as "positive" (freedom to pursue opportunities) and "negative" (freedom from external constraints on decision making). An ecological analysis of US data revealed a strong positive association (r = 0.41; P = .
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