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Examining adolescents' experiences of distress when participating in research on well-being and early life adversity.
Child Abuse Negl
October 2024
Departments of Community Health Sciences and Psychiatry, Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, MB R3E 0W3, Canada. Electronic address:
Rationale: Most child well-being and childhood adversity research is informed by proxy informants such as parents or teachers rather than children and youth. This may be due to concerns about perceived sensitivity, challenges accessing and engaging with children in research, ethical considerations, and apprehensions about causing undue harm and distress. This study aimed to understand adolescents' identification of, and reactions to, questions in the context of participating in a survey of well-being and adversity.
View Article and Find Full Text PDFEthical Considerations Regarding Financial Incentives in Plastic Surgery-Related Health Research.
Plast Surg (Oakv)
November 2024
Division of Plastic Surgery, Department of Surgery, McMaster University, Hamilton, ON, Canada.
To recruit enough patients to achieve adequate statistical power in clinical research, investigators often rely on financial incentives. The use of these incentives, however, remains controversial as they may cause patients to overlook risks associated with research participation. This concern is amplified in the context of plastic surgery where aesthetic procedures are often more desirable and are not typically covered by public or private insurance plans.
View Article and Find Full Text PDFA Roadmap for Improving Medicare's Application of Coverage With Evidence Development.
Value Health
September 2024
USC Schaeffer Center, University of Southern California, Washington, DC, USA. Electronic address:
The Centers for Medicare and Medicaid Services' coverage with evidence development (CED) policy allows the agency to provide coverage for an item or service through a National Coverage Determination (NCD), conditional upon an agreement to collect evidence designed to address specific questions or uncertainties. The goals of this policy are to expedite beneficiary access to new items and services and to generate additional evidence on the impact of these items or services for Medicare beneficiaries. However, these goals have not been fully realized because of several issues with the way the policy has been implemented, including (1) a lack of clear criteria for when CED will be applied, (2) examples of CED data collection activities placing unnecessary burdens on clinicians and the potential for undue inducement on beneficiaries, and (3) a lack of clarity around the process and timeline for reconsidering and ending CED requirements.
View Article and Find Full Text PDFImpact of financial compensation on enrollment and participation in a remote, mobile-app based research study.
J Clin Transl Sci
April 2024
Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA.
Background: There is no consensus on how to determine appropriate financial compensation for research recruitment. Selecting incentive amounts that are reasonable and respectful, without undue inducement, remains challenging. Previously, we demonstrated that incentive amount significantly impacts participants' willingness to complete various hypothetical research activities.
View Article and Find Full Text PDFAn experimental test of whether financial incentives constitute undue inducement in decision-making.
Nat Hum Behav
May 2024
Department of Economics and UBS Center for Economics in Society, University of Zurich, Zürich, Switzerland.
Around the world, laws limit the incentives that can be paid for transactions such as human research participation, egg donation or gestational surrogacy. A key reason is concerns about 'undue inducement'-the influential but empirically untested hypothesis that incentives can cause harm by distorting individual decision-making. Here I present two experiments (n = 671 and n = 406), including one based on a highly visceral transaction (eating insects).
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