Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).

Patient Educ Couns

Division of Cancer Prevention, National Cancer Institute, 6130 Executive Blvd., EPN 4051A, MSC 7365, Bethesda, MD 20892, USA.

Published: June 2005

AI Article Synopsis

  • Understanding the information needs of cancer patients is crucial for quality care, with a focus on their primary sources of information during diagnosis and treatment.
  • Most studies highlighted that treatment-related information was the most significant need, and health professionals were the primary source of this information.
  • Further research is needed to explore cancer patients' information needs at all stages of their care, including post-treatment recovery.

Article Abstract

Understanding what cancer patients need to know and from whom they receive information during the course of care is essential to ensuring quality care. We reviewed 112 articles published from 1980 to 2003 and developed a typology summarizing cancer patients' information needs and the sources from which they receive information. The majority of articles focused on information needs and sources during the diagnosis and treatment phase. Thus, the most frequent information need was treatment-related (38.1%). The most frequent information source was health professionals (27.3%). We examined patients' information needs and sources along the continuum of care and found that during diagnosis and treatment, information needs about the stage of disease, treatment options, and side-effects of treatment were prominent; during post-treatment, patients continued to need information about treatment, and information about recovery was also important. Future research should examine cancer patients' information needs and sources throughout their cancer journey.

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http://dx.doi.org/10.1016/j.pec.2004.06.006DOI Listing

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