Purpose: To evaluate the factors, including personality and coping styles, likely to be influential in enhancing the social stigma of epilepsy.
Methods: Data were collected from 400 adults with epilepsy recruited from 10 epilepsy centers in Korea. Clinical information about seizures was obtained by neurologists, and other information was collected from self-completed questionnaires, including those measuring stigma scales.
Results: Thirty-one percent of people with epilepsy felt stigmatized by their condition and in 9% of these the stigma was severe. Multivariate analysis identified experiences of actual discrimination from society, introverted personality, problem solving controllability, and emotional subscale of QOLIE-31 as being independently associated with the social stigma of epilepsy.
Conclusions: Episodes of discrimination, coping strategies, and personality may be important in feeling the stigma of epilepsy. These findings may provide a basis for further studies to clarify the causative factors generating the stigma of epilepsy.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1016/j.seizure.2005.01.001 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
The attitude of medical students, resident doctors, and nurses toward people with epilepsy: A multi-centre study.
Epilepsy Behav
January 2025
Department of Neurology, Faculty of Medicine, Universitas Indonesia/ Dr. Cipto Mangunkusumo General Hospital, Jakarta, Indonesia.
Introduction: The rising incidence of epilepsy has not been accompanied by sufficient public education, contributing to persistent social stigma towards people with epilepsy. This stigma leads to their exclusion and discrimination in key areas such as employment, education, and social interactions, ultimately diminishing their quality of life. This study aimed to assess the attitudes of medical students, resident doctors, and nurses toward people with epilepsy in three large cities in Indonesia.
View Article and Find Full Text PDFCaregiving burden for adults with epilepsy and coping strategies, a systematic review.
Epilepsy Behav
January 2025
Division of Neurology, Department of Medicine, Faculty of Medicine, Universiti Malaya, Kuala Lumpur, Malaysia.
Objectives: Caregiving for adults with epilepsy (AWE) imposes a different degree and scope of challenges than for children and teenagers with epilepsy, and it remains understudied. This study aimed to identify the types of caregiver burdens, needs, and coping strategies in caregiving for AWE.
Methods: Previous studies relevant to this topic were identified from 7 databases.
Job loss and reemployment of newly diagnosed people with epilepsy: A nationwide cohort study.
Epilepsia
January 2025
Department of Neurology, Asan Medical Center, University of Ulsan College of Medicine, Seoul, Republic of Korea.
Objective: Epilepsy has negative socioeconomic impacts on those affected, resulting not only from actual disability but also from social stigma. However, longitudinal studies examining occupational consequences following an epilepsy diagnosis are limited. We aimed to investigate the occupational outcomes of newly diagnosed epilepsy among Korean employees.
View Article and Find Full Text PDFKnowledge, attitude and perception of epilepsy patients toward epilepsy surgery at Jordan University hospital.
Epilepsy Behav
January 2025
Neurology Section/Internal Medicine Department , Jordan University Hospital, Amman 11942, Jordan.
Introduction: Epilepsy is a condition associated with stigma and considerable morbidity, placing a significant burden on patients and their families. It is fundamental to be mindful of the fact that a substantial number of patients remain unaware of the effective surgical procedures that have shown great success in many cases, drawing upon the global underutilization of epilepsy surgery (ES). In this study, we explore the knowledge and attitudes of epilepsy patients towards ES at Jordan University Hospital (JUH).
View Article and Find Full Text PDFBurden in caregivers of adults with epilepsy: A critical review.
Epilepsy Behav
January 2025
1(st) Department of Neurosurgery, National & Kapodistrian University of Athens, Greece.
Epilepsy imposes substantial challenges on informal caregivers, who play a vital role in supporting individuals with this condition. This review aims to explore the burden experienced by informal caregivers of adults with epilepsy and identify critical factors that influence their overall experience. A literature review was conducted following PRISMA guidelines.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!