In this paper I make a radical claim regarding selective non-disclosure of treatment options that have some hope of prolonging a patient's life. I suggest that selective non-disclosure under such circumstances is tantamount to what might be called "euthanasia by deception." I offer a case to test the validity of my claim and to demonstrate how the failure to offer or, at least, to discuss renal dialysis in this case (and, by inference, any other form of treatment which has some hope of prolonging a patient's life) qualifies as paternalism in its most egregious form. I discuss the actions of the health care team and try to find some plausible reasons why they acted as they did. I conclude that there must be greater emphasis placed on teaching clinicians how better to incorporate frank, open and on-going discussion about the central elements of the therapeutic relationship with patients long before they lose decisional capacity.
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http://dx.doi.org/10.1023/B:HCAN.0000044930.34781.f7 | DOI Listing |
Glob Health Res Policy
December 2024
ICMR-National Institute of Epidemiology (ICMR-NIE), R-127, TNHB, Ayapakkam, Chennai, Tamil Nadu, 600077, India.
Background: Tuberculosis (TB) poses a significant social and economic burden to households of persons with TB (PwTB). Despite free diagnosis and care under the National TB Elimination Programme (NTEP), individuals often experience significant out-of-pocket expenditure and lost productivity, causing financial catastrophe. We estimated the costs incurred by the PwTB during TB care and identified the factors associated with the costs.
View Article and Find Full Text PDFBMJ Open
October 2024
Department of Internal Medicine, College of Medicine and Health Sciences, Debre Tabor University, Debre Tabor, Ethiopia.
Disabil Rehabil
September 2024
Department of Education and Psychology, Qualitative Social and Education Research, Freie Universität Berlin, Berlin, Germany.
Purpose: Many young adults living with chronic illness fear being perceived as different by their peers and excluded from social activities. This forces them to consider whether to disclose or conceal their illness. This article analyses young adults' disclosure strategies and links them to peers' understanding of illness.
View Article and Find Full Text PDFJ Int Assoc Provid AIDS Care
September 2024
Department of Psychiatry and Biobehavioral Sciences, Semel Institute for Neuroscience and Human Behavior, Center for Community Health, University of California, Los Angeles, USA.
Objective: This study investigated women living with HIV/AIDS (WLHA)'s practices and decision-making regarding disclosure of HIV status in healthcare settings in Vietnam. Disclosure of HIV status in healthcare settings is under-studied.
Methods: We conducted in-depth interviews with 30 WLHA in Hanoi, Vietnam.
AIDS Res Ther
August 2024
Department of Paediatrics and Child Health, Makerere University Johns Hopkins University (MUJHU) Care Limited, Kampala, Uganda.
Introduction: People living with HIV (PLHIV) have a 20-fold risk of tuberculosis (TB) disease compared to HIV-negative people. In 2021, the uptake of TB preventive treatment among the children and adolescents living with HIV at the Baylor-Uganda HIV clinic was 45%, which was below the national target of 90%. Minimal evidence documents the enablers and barriers to TB preventive treatment (TPT) initiation and completion among children and adolescents living with HIV(CALHIV).
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