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Although few contemporary studies specifically address paternal adaptation, the theme of paternal estrangement from medical care and from family relationships is pervasive in the psychosocial literature on haemophilia. This estrangement has been shown to have a negative effect on fathers' psychological well-being, marital relationships and the adaptive outcome of their sons who have haemophilia. The goals of this study were to provide contemporary data on the psychosocial adaptation of fathers of boys with haemophilia and to examine specific variables that might influence their adjustment. Eighty-three eligible fathers returned a survey instrument that collected demographic and medical information, as well as scores on self-measures of adaptation in marital and parenting roles. Statistically significant direct correlations (P < 0.01) were found between fathers' scores on the Marital Adjustment Test and the Parenting Sense of Competence subscales (parenting efficacy and satisfaction). Variables specific to rearing a son with haemophilia that negatively affected fathers' marital adjustment scores included: feeling left out of medical decision making by their wives or partners, worry about their sons' having limited activity, and the presence of a secondary diagnosis in the affected child. Scores on the parenting efficacy subscale of the PSOC were statistically significantly reduced (i.e. fathers felt less effective in the parenting role) in men who 'rarely' or 'never' infused their sons (42/80, 53%). Variables that negatively affected scores on the parenting satisfaction subscale included frustrating interactions with medical staff and concern about their sons' potential to contract an infection or secondary diagnosis. This paper presents a model to examine the interrelationships among the data and discusses the clinical implications.
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http://dx.doi.org/10.1111/j.1365-2516.2004.00958.x | DOI Listing |
BMC Pregnancy Childbirth
March 2025
School of Nursing, Fujian Medical University, No 1 Xueyuan Road, Minhou county, Fuzhou, Fujian, 350122, China.
Background: The prevention and treatment of perinatal depression are currently the focus of perinatal health care, with cognitive reactivity confirmed to be an important predictor. However, how cognitive reactivity mediates the relationship between psychosocial factors (e.g.
View Article and Find Full Text PDFJ Epidemiol Community Health
March 2025
The University of Sydney Discipline of Psychiatry-Central Clinical School, Sydney, New South Wales, Australia.
Background: Mental illness is the leading cause of employee absence and vocational disability in many countries. The Job Demand-Control model posits that risk factors for mental illness include psychosocial stressors such as high job demands and low job control. We determined (1) if the prevalence of population-level work-related risk factors has changed over time (workplace change) and (2) whether the strength of the association between risk factors and mental health has changed over time (workforce change).
View Article and Find Full Text PDFOtolaryngol Pol
March 2025
Research and Development Centre, Regional Specialist Hospital in Wroclaw, Poland.
<b>Introduction:</b> The Ready for Safe Cancer Treatment (RESET) tool is a structured, multimodal program designed to optimize hospitalization and enhance the quality of perioperative care for oncological patients. While RESET has been developed as a general framework for surgical oncology, its adaptation to Head and Neck Cancer (HNC) patients remains unexplored despite their unique physiological and psychological needs. HNC patients frequently face severe functional impairments affecting speech, swallowing, and respiration, as well as heightened nutritional deficiencies, sarcopenia, and psychological distress.
View Article and Find Full Text PDFBMJ Open
March 2025
Department of Psychiatry, Christian Medical College, Vellore, Tamil Nadu, India
Background: Persons with serious mental illness (SMI) continue to be largely taken care of by their families in India. Religion-based explanatory models of illness and religious coping methods are commonly employed by caregivers to deal with the burden of caregiving. While there is evidence to support the positive impact of religiosity on caregiving, there are no qualitative studies that have explored these beliefs.
View Article and Find Full Text PDFPsychooncology
March 2025
Faculty of Nursing, Health Science Center, Xi'an Jiaotong University, Xi'an, China.
Objective: Urostomy profoundly alters the body image of bladder cancer patients, leading to a series of physiological, psychological, social, and functional changes. This review aims to synthesize qualitative research on urostomy patients' life experiences to provide healthcare professionals with a complete understanding of the patient's problems and needs, thereby guiding the development of interventions and continuous care services.
Methods: This review adhered to the ENTREQ guide.
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