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The liminal space between hope and grief: The phenomenon of uncertainty as experienced by people living with relapsing-remitting multiple sclerosis.
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Department of Care Ethics, University of Humanistic Studies, Utrecht, The Netherlands.
Background: People with the chronic disease Multiple Sclerosis are subjected to different degrees of profound uncertainty. Uncertainty has been linked to adverse psychological effects such as feelings of heightened vulnerability, avoidance of decision-making, fear, worry, anxiety disorders, and even depression. Research into Multiple Sclerosis has a predominant focus on the scientific, practical, and psychosocial issues of uncertainty.
View Article and Find Full Text PDFDevelopment and evaluation of a Hospice Foundation of Taiwan Bereavement Assessment Scale: A psychometric properties test.
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Department of Thanatology and Health Counseling, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan.
Objectives: Supporting family caregivers (FCs) is a critical core function of palliative care. Brief, reliable tools suitable for busy clinical work in Taiwan are needed to assess bereavement risk factors accurately. The aim is to develop and evaluate a brief bereavement scale completed by FCs and applicable to medical staff.
View Article and Find Full Text PDFCultural differences on baby loss experiences: A comparison of the US and New Zealand.
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Marketing, Drexel University, Philadelphia, Pennsylvania, USA.
Prior research has shown that the death of a baby (whether it be through miscarriage, stillbirth, or infant loss) can have profound effects on the parents involved. However, research has yet to adequately understand how these effects differ cross-culturally. Our research addresses these issues through a qualitative study of 47 bereaved mothers in the United States and New Zealand-cultures that have differing perspectives on death.
View Article and Find Full Text PDFThe Meaning of Ageing and the Educational Intervention "Good Life in Old Age": An Ethnographic Study Reflecting the Perspective of Older Adults with Mild Intellectual Disability.
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Department of Health Sciences, Faculty of Medicine, Lund University, P.O. Box 117, SE-221 00 Lund, Sweden.
Older adults with intellectual disabilities are not adequately prepared for ageing and show anxiety and uncertainty regarding the future. Therefore, the two-year educational intervention "Good Life in Old Age" was implemented to improve their understanding of ageing and enhance their well-being. This study aimed to explore the meaning of ageing during and after the intervention from the perspective of older adults with mild intellectual disability.
View Article and Find Full Text PDFMothers Who Accompany a Child to Their Death: Starting Again Without Ever Forgetting.
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Nursing School of Lisbon, 1990-096 Lisbon, Portugal.
Parents who accompany their children with a complex chronic illness until their death experience a unique situation, with vulnerabilities, specific needs and enormous suffering. The aim of the study was to describe the lived experience of parents who accompanied their children with a complex chronic illness until their death, in a paediatric palliative care setting. : We opted for a qualitative methodology, with a descriptive phenomenological orientation.
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