Objective: Much of what we know about ethical issues in palliative care comes from the perceptions of physicians and ethicists. In this study our goal was to hear other voices and to gain first-hand knowledge of the possibly contrasting views of patients, their families, nurses, volunteers, and other team members on end-of-life issues.
Design: Qualitative study using semistructured interviews.
Setting: Inpatient and consultation palliative care service of the Royal Victoria Hospital in Montreal, Que.
Participants: Of 113 people interviewed, 13 were patients, 43 were family members, 32 were volunteers, 14 were nurses, and 11 were other staff.
Method: Interviewers elicited subjects' perspectives on ethical issues. Content analysis was used to identify, code, and categorize themes in the data.
Main Findings: Communication difficulties and insufficient resources and staff were the most frequently mentioned problems in this palliative care setting.
Conclusion: The findings of this study will help guide policy decisions and setting of educational priorities in end-of-life care, particularly regarding the importance of adequate communication.
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