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Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies.
J Intellect Dev Disabil
June 2024
College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.
Background: Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the literature and how these might vary.
View Article and Find Full Text PDFFactors related to patients' readiness for advance care planning: a systematic review.
BMC Public Health
January 2025
Nursing Care Research Center, Clinical Sciences Institute, Baqiyatallah University of Medical Sciences, Tehran, Iran.
Background: Advance care planning can help to align the care provided with the values, goals and preferences of patients at the end of life. Therefore, readiness for advanced care planning is considered a prerequisite and predictor of the patient's willingness to participate in the end of life conversation. The present study was conducted with the aim of investigating the factors affecting patients' readiness for advance care planning (RACP).
View Article and Find Full Text PDFNavigating a New Normal: A Qualitative Look at Long-Term Care Planning for Children with Intellectual Disabilities Post-COVID-19.
Healthcare (Basel)
December 2024
Hong Chi Winifred Mary Cheung Morninghope School, 220 Lai King Hill Road, Kwai Chung, Hong Kong, China.
Family caregivers of individuals with intellectual disabilities (ID) face numerous challenges in long-term planning, which have been exacerbated amidst the COVID-19 pandemic. Specific triggers raise awareness of future planning needs, but barriers like painful emotions and exhaustion often impede the process. This study aimed to explore Hong Kong (HK) caregivers' perspectives on long-term planning for family members with ID at the later period of the pandemic.
View Article and Find Full Text PDFRevising the definition of "demand satisfied for modern methods of family planning:" A cross-sectional study to explore incorporating person-centered constructs of demand, choice, and satisfaction.
PLoS One
January 2025
Guttmacher Institute, New York, New York, United States of America.
Several challenges to validity have been identified with standard approaches used to measure "demand satisfied for modern methods of family planning." This study explored construct validity of the widely used indicator for "demand satisfied" by comparing the standard definition to alternative definitions of the indicator highlighting dimensions of women's own perceived demand, choice, and satisfaction. This cross-sectional study of women aged 15-49 years was conducted in Argentina (n = 1492), Ghana (n = 1600), and India (n = 1702) using a two-staged random sampling design.
View Article and Find Full Text PDF[Making Advance Care Planning a Reality-A Step-by-Step Guide].
Gan To Kagaku Ryoho
December 2024
Dept. of Palliative and Supportive Care, Institute of Medicine, University of Tsukuba.
Advance care planning(ACP)was officially incorporated into Japan's healthcare system in 2018 with the revision of the "Guidelines for the Decision-Making Process in End-of-Life Care"by the Ministry of Health, Labor and Welfare. This revision mandated that the government designated cancer hospitals and comprehensive community care wards establish systems for implementing ACP. Consequently, the implementation and promotion of ACP have become significant issues in the healthcare field.
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