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Gliomatosis cerebri in children: A poor prognostic phenotype of diffuse gliomas with a distinct molecular profile.
Neuro Oncol
September 2024
Division of Pediatric Hematology and Oncology, University Medical Center Göttingen, Göttingen, Germany.
Background: The term gliomatosis cerebri (GC), a radiology-defined highly infiltrating diffuse glioma, has been abandoned since molecular GC-associated features could not be established.
Methods: We conducted a multinational retrospective study of 104 children and adolescents with GC providing comprehensive clinical and (epi-)genetic characterization.
Results: Median overall survival (OS) was 15.
Cris de Coeur and the Moral Imperative to Listen to and Learn from Intersex People.
Narrat Inq Bioeth
June 2016
Intersex people first began to publicly tell their stories in the 1990s. Twenty years on, these narratives, scorching in their candor, attest to a continuing failure to bear witness to or to acknowledge some of the most painful experiences we inflict on one another. More than anecdotes, these narratives provide a first-person reflection on care and thus represent a type of long-term follow-up that is largely absent in clinical literature.
View Article and Find Full Text PDFOur February readership survey gave interesting information, and some fairly universal cris de coeur - especially about the lack of funds available to support field research. You were critical of the journal's delivery times - which, for various reasons, should now improve - but in amongst the compliments and undisguised flattery were some real gems. I want to thank all of you who sent in completed replies, and here I have attempted to summarize some of the most significant trends suggested by your responses.
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