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Perennial issues and current controversies: 50 years of the JME.
J Med Ethics
January 2025
Centre for Social Ethics & Policy, The University of Manchester, Manchester, UK
Using Natural Language Processing and Social Media Data to Understand the Lived Experience of People with Fibromyalgia.
Healthcare (Basel)
December 2024
Division of Rheumatology, Mayo Clinic Florida, Jacksonville, FL 32224, USA.
Background And Objectives: Fibromyalgia has many unmet needs relating to treatment, and the delivery of effective and evidence-based healthcare is lacking. We analyzed social media conversations to understand the patients' perspectives on the lived experience of fibromyalgia, factors reported to trigger flares of pain, and the treatments being discussed, identifying barriers and opportunities to improve healthcare delivery.
Methods: A non-interventional retrospective analysis accessed detail-rich conversations about fibromyalgia patients' experiences with 714,000 documents, including a fibromyalgia language tag, which were curated between May 2019 and April 2021.
Views on Augmented Reality and Neurodevelopmental Communication Disability: Survey of Parents, Educators, and Health Professionals.
J Autism Dev Disord
December 2024
Faculty of Health, University of Technology Sydney Graduate School of Health, PO Box 123, Sydney, Ultimo, NSW, 2007, Australia.
Purpose: The use of Augmented Reality (AR) in the field of neurodevelopmental communication disability is emergent and under-researched. The views of supporters on the use of AR by children with neurodevelopmental communication disability will help in the design of applications suited to their educational, learning, social, and communication needs.
Aims: To determine the views of supporters of children with neurodevelopmental communication disability on the use of AR, and facilitators or barriers to its use.
Searching for a serial killer on a hospital ward.
Forensic Sci Int
December 2024
Tampere University, Faculty of Social Sciences, Arvo building, Arvo Ylpon katu 34, Tampere, Finland.
Article Synopsis
- The case of Lucy Letby illustrates the difficulty of identifying serial killers in healthcare settings, emphasizing the need for improved statistical methods in legal investigations.
- A nurse was convicted for injecting an infant with insulin, and an analysis of 29 suspicious deaths in a geriatric unit revealed a significant correlation between her night shifts and the incidents.
- While statistical methods can enhance investigative targeting, they must complement thorough investigations to accurately determine the causes of death in suspicious cases.
From trusted intruder to real collaborator: Mapping the ecosystem of stakeholders and community assets in a coastal region in England, with a focus on end-of-life care and bereavement support.
Soc Sci Med
January 2025
Palliative and End of Life Care Research Group [PEOLC], Population Health Sciences, University of Bristol, UK. Electronic address:
While policy efforts to promote health through integration across sectors are not new, the 2022 UK Health and Care Act formalised Integrated Care Systems (ICSs) as legal entities with statutory powers in England. This includes a legal responsibility to commission adequate palliative and end-of-life care services, including bereavement support, for the communities they serve. Cross-sector partnerships that leverage community assets are recommended to tackle inequities towards the end of life and in bereavement.
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