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Rare disease 101: an online resource teaching on over 7000 rare diseases in one short course.
Orphanet J Rare Dis
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Medics4RareDiseases, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS, UK.
Background: An estimated 3.5 million people in the UK live with a rare disease however due to the rarity of each individual condition this is not currently reflected in mainstream medical education. As a result, common features of living with a rare condition include diagnostic delay, poor coordination of health and social care and lack of access to specialist care and treatment.
View Article and Find Full Text PDFHealth and well-being needs of Indigenous adolescents: a protocol for a scoping review of qualitative studies.
BMJ Open
May 2024
Ngāi Tahu Māori Health Research Unit, University of Otago, Dunedin, Aotearoa New Zealand
Introduction: Improving the health of Indigenous adolescents is central to addressing the health inequities faced by Indigenous peoples. To achieve this, it is critical to understand what is needed from the perspectives of Indigenous adolescents themselves. There have been many qualitative studies that capture the perspectives of Indigenous young people, but synthesis of these has been limited to date.
View Article and Find Full Text PDFThe ethics of aggregation in cost-effectiveness analysis or, "on books, bookshelves, and budget impact".
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Department of Global Health and Social Medicine, King's College London, London, United Kingdom.
In deciding how to allocate resources, healthcare priority-setters are increasingly paying attention to an intervention's budget impact alongside its cost-effectiveness. Some argue that approaches that use budget impact as a substantive consideration unfairly disadvantage individuals who belong to large patient groups. Others reject such claims of "numerical discrimination" on the grounds that consideration of the full budget impact of an intervention's adoption is necessary to properly estimate opportunity cost.
View Article and Find Full Text PDFA Scoping Review and Conceptual Framework Examining the Role of Sleep Disturbance in Financial Exploitation in Older Adults.
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VA Greater Los Angeles Healthcare System, North Hills, CA, USA.
Sleep disturbances and financial exploitation have both been linked to impaired cognitive ability, loneliness, and depressed mood in older adults, suggesting a potential role of sleep disturbances in increasing vulnerability to financial exploitation. We sought to identify evidence linking sleep disturbances to financial exploitation. We conducted a systematic search of MEDLINE, PubMed Central, and National Center for Biotechnology Information Bookshelf for relevant published articles on sleep and financial exploitation.
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