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"They don't care to study it": Trust, race, and health care experiences among patient-caregiver dyads with multiple myeloma.
Cancer Med
May 2024
Odum Institute for Research in Social Sciences, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Article Synopsis
- Medical mistrust significantly impacts Black/African American patients in cancer care, particularly in multiple myeloma, due to historical unethical practices.
- The study examined experiences of Black/AA and White patient-caregiver dyads, highlighting themes of knowledge, emotional burden, differing health care perceptions, and strategies to mitigate mistrust.
- Key findings indicate that Black/AA participants were more aware of historical injustices and emphasized the importance of strong patient-provider relationships for building trust in medical settings.
Trust in Medical Research: A Comparative Study among Patients at a Regional Referral Hospital and Community Members in Lira District, Northern Uganda.
J Empir Res Hum Res Ethics
February 2024
Department of Community Health, Mbarara University of Science and Technology, Mbarara, Uganda.
Events such as the Tuskegee syphilis study shaped how the public perceives and trusts medical research globally. However, few studies have examined trust in medical research in developing countries. We tested the hypothesis that levels of trust may be lower among community members compared to hospitalized persons in Uganda.
View Article and Find Full Text PDFWhile most are aware of the Tuskegee syphilis experiments in which African American syphilis patients went untreated, less is known about experiments with malaria fever therapy conducted upon syphilis patients during the same period by the Unites States Public Health Service at the Williams Laboratory on the grounds of the South Carolina State Hospital (SCSH) in Columbia, SC. Over a twenty-year period, physicians maintained patients as malaria reservoirs for patient-to-patient inoculation and subjected patients to extreme fevers and thousands upon thousands of insect bites as part of a program in which one disease was tested as therapy for another. Using extant administrative files, medical journals from the period, and a database created from SCSH annual reports, this paper considers the ethics of malaria fever therapy experiments while exposing the conditions under which patients suffered the intersecting oppressions of race, class, and mental illness.
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