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Dying in a Homophobic Nation: Addressing Healthcare Disparities, Advance Care Planning and Surrogate Decision-Making Challenges for Sexual and Gender Minority Older Adults at End-of-Life.
Am J Hosp Palliat Care
January 2025
NYU Langone Health, New York, NY, USA.
Promoting autonomy in medical decision-making is an essential part of palliative care. Therefore, palliative care providers should prioritize supporting the autonomy of sexual and gender minority (SGM) older adults, a community that has historically suffered from healthcare disparities. This support is particularly significant when an illness or injury renders a patient unable to make medical decisions, necessitating the designation of a surrogate decision-maker.
View Article and Find Full Text PDFPatient clusters based on demographics, clinical characteristics and cancer-related symptoms: A cross-sectional pilot study.
Eur J Oncol Nurs
January 2025
Clinical Research Service, IRCCS Policlinico San Donato, San Donato Milanese, Italy; Department of Biomedical Sciences for Health, University of Milan, Milan, Italy. Electronic address:
Purpose: This study aimed to identify and preliminary validate distinct clusters of patients with cancer based on demographics, clinical characteristics, and symptoms and to inform future research on sample size requirements for achieving sufficient power in clustering analyses.
Methods: This cross-sectional pilot study involved 114 patients with cancer from two hospitals in northern Italy. Data were collected on demographics, clinical characteristics, and 20 symptoms using the Edmonton Symptom Assessment System in October 2022.
Mapping Interdisciplinary Role Ownership Over Actionable Practices Identified From the Bereaved Family Survey.
Am J Hosp Palliat Care
January 2025
VA Quality Improvement Resource Center for Palliative Care, VA Palo Alto Health Care System, Palo Alto, CA, USA.
Purpose: To determine the feasibility of mapping interdisciplinary role ownership over actionable practices identified from qualitative comments in the Veterans Affairs Bereaved Family Survey (BFS).
Methods: We polled two providers from each of 14 disciplines as to whether an actionable practice that improved end-of-life care quality sits within their scope of practice. We grouped practices by having the greatest, middle, and fewest number of disciplines that claimed role ownership and then characterized what roles were shared.
Ten Years After Diagnosis.
JAMA Oncol
January 2025
MERI Center for Education in Palliative Care, University of California San Francisco, San Francisco.
Responsive cancer care in Asia: stigma and pain must be acknowledged and addressed.
Support Care Cancer
January 2025
Duke-NUS Medical School, Lien Centre for Palliative Care, 8 College Road, Level 4, Singapore, 169857, Singapore.
Purpose: This study investigates whether cancer-related stigma and pain among patients with advanced cancer influences their perceptions of receiving responsive care.
Methods: We surveyed 2138 advanced cancer patients from 11 hospitals in eight Asian countries. Participants rated their most recent healthcare visit and a hypothetical patient's experience described in vignettes concerning dignity, clarity of information, and involvement in decision-making.
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