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Using visual storytelling to share aggregate findings with families participating in clinical genomics research.
Genet Med Open
April 2024
UCSF Bioethics, University of California, San Francisco, CA.
Purpose: Sharing aggregate results with research participants is a widely agreed-upon ethical obligation; yet, there is little research on communicating study results to diverse populations enrolled in genomics research. This article describes the cocreation of a visual narrative to explain research findings to families enrolled in a clinical genomics research study.
Methods: The design process involved researchers, clinicians, study participants, a physician illustrator, and a health communications expert.
CANAIRI: the Collaboration for Translational Artificial Intelligence Trials in healthcare.
Nat Med
January 2025
Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
Texas Executive Order GA-46 and the Erosion of Trust in Health Care.
N Engl J Med
January 2025
From the Division of Health Services, Outcomes, and Policy, Department of Radiation Oncology, Emory University School of Medicine, and the Department of Health Policy and Management, Emory Rollins School of Public Health - both in Atlanta (P.M.G.S.); the Center for Bioethics and Humanities, SUNY Upstate Medical Center, Syracuse, NY (R.E.F.); and the Department of Internal Medicine, University of Colorado-Anschutz Medical Center, Aurora (L.C.).
Perspectives on Contraception, Pregnancy, and Reproductive Health Counseling from Young Women With Inflammatory Bowel Disease.
Crohns Colitis 360
January 2025
Department of Social Medicine, Center for Bioethics, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Background/aims: Active inflammatory bowel disease (IBD) increases the risk of pregnancy complications and contraceptive side effects, and contraceptive use may impact the clinical course of IBD. Although young people are at elevated risk for unintended pregnancy, those with IBD receive minimal disease-specific contraceptive guidance. We characterized perspectives and preferences on contraception and reproductive health counseling from young women with IBD.
View Article and Find Full Text PDFHow to Engage Men in Preconception Health?: A Scoping Review.
Iran J Nurs Midwifery Res
November 2024
Post Graduate Study Program, Faculty of Psychology, Ahmad Dahlan University, Yogyakarta, Indonesia.
Background: Men's engagement in maternal and child health care in the preconception health forum is essential because it allows primary prevention of maternal and infant mortality and morbidity. This review aimed to identify strategies to engage men in preconception health.
Materials And Methods: This scoping review was conducted from August to September 2022.
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