Informed consent is a legal and ethical requirement of most research in human beings, but obtaining proof of consent in illiterate populations can prove problematic. We used audiovisual documentation of oral consent (video and audiotape recording and photography), a new method of informed consent designed for illiterate populations, in the Guarani Indians Project, a genetic study in the Paraguayan Guarani Indians. We obtained consent from 42 of about 100 potential participants. We believe that our procedure allowed more than half the potential participants to exercise their freedom of refusal. We propose to include this new method as a standard procedure for clinical research in illiterate populations as an alternative to written and signed consent.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1016/S0140-6736(02)08361-7 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Barriers to treatment seeking for depression among elderly service users at Butabika National Referral and Teaching hospital, Kampala- Uganda.
Aging Ment Health
January 2025
Department of Social Work and Social Administration, Makerere University, Kampala, Uganda.
Objectives: Depression among the elderly is a significant public health concern in Uganda, where cultural, social, and healthcare-related barriers hinder access to treatment and support. This study examines the barriers to mental health service access faced by elderly service-users in Uganda.
Method: Using an interpretive phenomenological approach, in-depth interviews were conducted to capture the lived experiences of elderly Baganda service users receiving treatment at Butabika National Referral and Teaching hospital.
[The emancipatory perspective of health literacy in Brazil: contributions from the Freirean thought to knowledge translation regarding a global concept].
Cad Saude Publica
January 2025
Escola Nacional de Saúde Pública Sergio Arouca, Fundação Oswaldo Cruz, Rio de Janeiro, Brasil.
This article seeks to reveal the potential for applying key principles of Freirean pedagogy for the effective translation of knowledge and practices associated with the concept of health literacy followed worldwide, based on a critical and emancipatory perspective. It starts from the observation that the process of adopting the concept in Brazil has been more utilitarian than critical, with initiatives predominantly focused on the translation and use of instruments to assess health literacy among population groups. In doing so, this approach has overlooked the academic contributions, practical actors, and social movements in various regions of the country, regarding the application of principles and values of Paulo Freire's thought for the emancipatory promotion of health for individuals and population groups.
View Article and Find Full Text PDFPredictors of Dental Misconceptions Among Taif Population, Saudi Arabia.
Oral Health Prev Dent
January 2025
Purpose: Health education programmes play a crucial role in enhancing oral health literacy and improving treatment outcomes. However, myths and misconceptions about oral health are widespread, affecting individuals' behaviours and their willingness to seek appropriate treatment. This study aimed to investigate the prevalence of oral health myths and misconceptions among adults in Taif, Saudi Arabia, and to explore potential associations with demographic factors.
View Article and Find Full Text PDFCross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis.
PEC Innov
June 2025
Laboratory of Pharmaceutical Epidemiology, Facultad de Farmacia, Universidad Autónoma del Estado de Morelos, Cuernavaca, Morelos, México.
Background: Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.
Objective: To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.
The impact of environmental literacy on the health level of rural residents: evidence from the mountainous areas of Sichuan, China.
Front Public Health
January 2025
Institute of Mountain Hazards and Environment, Chinese Academy of Sciences, Chengdu, China.
Introduction: Environmental pollution and health issues are hot topics of discussion in modern society. However, there is a lack of research from the perspective of subjective factors such as environmental protection to study the impact of environmental literacy on health, especially in rural areas.
Methods: First, through field research in the mountainous rural areas of Sichuan Province, 396 data points were collected.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!