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The liminal space between hope and grief: The phenomenon of uncertainty as experienced by people living with relapsing-remitting multiple sclerosis.
PLoS One
January 2025
Department of Care Ethics, University of Humanistic Studies, Utrecht, The Netherlands.
Background: People with the chronic disease Multiple Sclerosis are subjected to different degrees of profound uncertainty. Uncertainty has been linked to adverse psychological effects such as feelings of heightened vulnerability, avoidance of decision-making, fear, worry, anxiety disorders, and even depression. Research into Multiple Sclerosis has a predominant focus on the scientific, practical, and psychosocial issues of uncertainty.
View Article and Find Full Text PDF[Palliative care : not wait for the end of life].
Rev Med Suisse
January 2025
Service de médecine palliative, Hôpitaux universitaires de Genève, 1211 Genève 14.
Patients with serious illnesses wish to maintain their autonomy and decide the course of their end of life. The role of healthcare professionals is to assess the patient's understanding of their illness, help them become aware of the progression of their condition, and adapt these conversations according to the patient's emotional state, while providing regular spaces for discussion. Some patients continue to have expectations that may seem unrealistic despite a limited prognosis.
View Article and Find Full Text PDF[Access requirements for medically assisted death: an open question.].
Recenti Prog Med
January 2025
Dipartimento di Biomedicina, neuroscienze e diagnostica avanzata, Università di Palermo.
The commentary focuses on the requirements for access to medical assistance in dying in countries where this practice is legal. It shows that the different solutions adopted reflect a different balance between the principles of protection of life, reduction of suffering and respect for autonomy. The article also analyses the potential ethical problems associated with the decision-making capacity of psychiatric patients.
View Article and Find Full Text PDFFuture directions of spiritual care where spiritual care providers do not exist: a qualitative study.
BMC Palliat Care
January 2025
Department of Family Medicine, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Rama VI Street, Ratchtevi district, Bangkok, 10400, Thailand.
Introduction: Spiritual care is a fundamental aspect of palliative care, addressing the emotional, existential, and spiritual needs of patients facing life-threatening illnesses. However, in Thailand, the integration of spiritual care into the healthcare system remains underdeveloped due to the absence of professional spiritual care providers. This study aims to explore potential models and future directions for spiritual care within the palliative care context, focusing on how such care can be provided in the absence of professional spiritual care providers.
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