As hospital length-of-stay decreases and ambulatory care options increase, patients and their families are expected to handle more and more of patients' care needs. In Halifax, patients of the Queen Elizabeth II (QEII) Health Sciences Centre have a resource to help them learn how to meet those needs: the Patient-Family Learning Centre (PFLC).
Download full-text PDF |
Source |
|---|
Publication Analysis
Top Keywords
Similar Publications
Health care transition quadruple aim outcomes for IDD: Scoping review.
Health Care Transit
August 2024
Department of Pediatrics, Northwestern, Ann & Robert H. Lurie Children's Hospital of Chicago Box 152, 225 E Chicago Avenue, Chicago, IL 60611, USA.
Purpose: Structured HCT models addressing planning, transfer, and integration into adult care for adolescents and young adults with childhood-acquired chronic conditions are becoming more prevalent. However, consensus on outcome measures to assess health care transition (HCT) interventions particularly for intellectual and developmental disabilities (IDD) population is lacking. This scoping review identified potential HCT outcome measures for young adults (aged 18-26) with IDD using the Quadruple Aim Framework.
View Article and Find Full Text PDFHigh-Fidelity Clinical Simulation to Improve a Pediatric Clinical Trial Design: Lessons Learned and Conceptualization of the Return on Investment (ROI) and Return on Engagement (ROE) Analysis.
Paediatr Drugs
November 2024
Institut de Recerca Sant Joan de Déu, Santa Rosa 39-57, 08950, Esplugues de Llobregat, Spain.
Article Synopsis
- Clinical trials for pediatric patients are complex, especially with decentralized designs, and high-realistic simulations can help refine processes and improve interactions among professionals, patients, and families.
- This research examined how simulations affected three critical stages of a clinical trial: the initial visit, home drug administration by parents, and pharmacokinetics sample processing by a home nurse.
- The findings showed that while families could administer the drug as required, they faced challenges, and recommendations were provided to enhance safety and patient experience in future trials, highlighting the value of simulation to proactively identify risks and improve protocols before finalization.
Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis.
Front Pediatr
October 2024
Division of Rheumatology, Department of Pediatrics, Seattle Children's Hospital, Seattle, WA, United States.
Article Synopsis
- * Current treatment decisions often rely on general clinical trial data or insurance policies, rather than considering the individual characteristics of the patient and the unique effects of treatments.
- * A proposed solution is to use digital health technology to create a tool that incorporates real-world patient data, enabling personalized treatment decisions through shared discussions between families and rheumatologists.
Identifying factors influencing emerging innovations in hospital discharge decision making in response to system stress: a qualitative study.
BMC Health Serv Res
October 2024
Veterans Affairs Health Services Research and Development Center for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs Health Care System, Minneapolis, MN, 55417, USA.
Background: The purpose of this qualitative study was to identify emergent rehabilitation innovations and clinician perceptions influencing their implementation and outcomes related to hospital discharge decision-making during the Coronavirus 2019 pandemic.
Methods: Rehabilitation clinicians were recruited from the Veterans Affairs Health Care System and participated in individual semi-structured interviews guided by the integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework. Data were analyzed using a rapid qualitative, deductive team-based approach informed by directed content analysis.
Mapping the Patient Experience in a Pediatric Hemophilia Unit: Our Patient Journey.
J Clin Med
October 2024
Quality and Patient Experience Department, Hospital Sant Joan de Déu, Sant Joan de Déu 2, 08950 Esplugues de Llobregat, Spain.
: Hemophilia is a rare X-linked bleeding disorder. Prophylaxis has improved outcomes, but there are still unmet needs to be addressed. The aim of this study was to develop a patient journey in pediatric patients with hemophilia, a visual tool that illustrates patients' relationship with the healthcare provider through time useful for identifying patient needs, potential concerns ("pain points"), and gaps in care.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!