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General-Purpose Privacy Regulation and Translational Genomics.
J Law Med Ethics
March 2020
William McGeveran, J.D., is Associate Dean for Academic Affairs and Julius E. Davis Professor of Law at the University of Minnesota. He is the author of a casebook and many articles on data privacy law, and serves as reporter for a Uniform Law Commission project to draft a model state privacy law. Caroline Schmitz, J.D., graduated cum laude from the University of Minnesota Law School in May 2019. While in law school, she participated in the Data Compliance Practicum and the Consumer Protection Clinic. She now works for the Federal Trade Commission (FTC) in its Division of Privacy & Identity Protection. Caroline participated in co-authoring this article in her personal capacity, not as a representative of the FTC, and the views expressed are her own and not necessarily those of the Commission or any individual Commissioner.
At one time, specialized health privacy laws represented the bulk of the rules regulating genetic privacy, Today, however, as both the field of genomics and the content of privacy law change rapidly, a new generation of general-purpose privacy laws may impose new restrictions on collection, storage, and disclosure of genetic data. This article surveys these laws and considers implications.
View Article and Find Full Text PDFReproductive Information and Reproductive Decision-Making.
J Law Med Ethics
August 2016
Arthur E. Petersilge Professor of Law and Director of the Law-Medicine Center, Case School of Law, and Professor of Biomedical Ethics, Case School of Medicine. He received his J.D. from Yale Law School in 1975, and holds two bachelors degrees, one from Reed College and one from Oxford University, which he attended as a Rhodes Scholar. Prior to joining the Case faculty in 1984, Professor Mehlman practiced law with Arnold & Porter in Washington, D.C., where he specialized in federal regulation of health care and medical technology. He is the co-author of Access to the Genome: The Challenge to Equality; co-editor, with Tom Murray, of the Encyclopedia of Ethical, Legal and Policy Issues in Biotechnology; co-author of Genetics: Ethics, Law and Policy, the first casebook on genetics and law, now in its third edition; and author of Wondergenes: Genetic Enhancement and the Future of Society (Indiana University Press, 2003), The Price of Perfection: Individualism and Society in the Era of Biomedical Enhancement (Johns Hopkins University Press, 2009), and Transhumanist Dreams and Dystopian Nightmares: The Promise and Peril of Genetic Engineering (Johns Hopkins University Press, 2012).
Opponents of reproductive choice are attempting to limit reproductive decisions based on certain underlying reasons. This commentary explores the rationales for these limitations and the objections to them. It concludes that reasoned-based limitations are unsupportable and unenforceable.
View Article and Find Full Text PDFGenetics casebook. Pyloric atresia.
J Perinatol
January 1999
Division of Clinical Genetics, University of Medicine and Dentistry of New Jersey, Robert Wood Johnson Medical School, New Brunswick 08903-0591, USA.
Genetics casebook. X-linked dominant chrondrodyplasia punctata without stippled epiphyses.
J Perinatol
July 1997
Mallinckrodt Institute of Radiology, Department of Radiology, St. Louis, MO 63110, USA.
Genetics casebook. Pallister-Killian sindrome.
J Perinatol
February 1997
Division of Clinical Genetics, University of Medicine and Dentistry of New Jersey, Robert Wood Johnson Medical School, New Brunswick 08903-0591, USA.
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