"She was finally mine": the moral experience of families in the context of trisomy 13 and 18- a scoping review with thematic analysis.

Introduction: The value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes.

Methods: We conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 18 (T13/18) with subsequent thematic analysis of the 17 included articles.

Findings: Themes constructed include (1) Pride as Resistance, (2) Negotiating Normalcy and (3) The Significance of Time.