Validity of self-reported endometriosis: a comparison across four cohorts.

Study Question: How accurately do women report a diagnosis of endometriosis on self-administered questionnaires?

Summary Answer: Based on the analysis of four international cohorts, women self-report endometriosis fairly accurately with a > 70% confirmation for clinical and surgical records.

What Is Known Already: The study of complex diseases requires large, diverse population-based samples, and endometriosis is no exception. Due to the difficulty of obtaining medical records for a condition that may have been diagnosed years earlier and for which there is no standardized documentation, reliance on self-report is necessary.