Haemophilia home care: A qualitative evaluation study of the Be Involved infusion program.

Introduction: In Canada, patients with haemophilia can receive health care through a limited number of specialized haemophilia treatment centres. Treatment of this X-linked bleeding disorder through self-infusion of factor replacement is common; however, some individuals with haemophilia require additional infusion support from medical professionals. While provincially funded outreach clinics and telehealth are available, pharmaceutical companies that supply factor have developed novel home infusion programs wherein registered nurses assist/manage factor administration in the patients' homes.

The evolving role of patient preference studies in health-care decision-making, from clinical drug development to clinical care management.

: There is a growing trend of using patient preference studies to help incorporate the patient perspective into clinical drug development, care management, and health-care decision-making. Collecting and interpreting patient preference data is integral to multi-stakeholder engagement, patient-centric drug development, and clinical care management. Operationally, challenges exist in understanding 'when' and 'how' to embark on patient preference studies.

AcroVoice: eliciting the patients' perspective on acromegaly disease activity.

Purpose: To determine how patients define acromegaly disease activity and treatment success and to quantify from the patients' perspective the relative importance of each disease parameter included in the ACRODAT®.

Methods: One hundred acromegaly patients on medical therapy (mean age = 47.1 years; SD = 11.

Nonvocational outcomes of vocational rehabilitation: reduction in health services utilization.

Background: Numerous studies have demonstrated the beneficial effects of vocational rehabilitation on vocational outcomes in individuals with a mental illness, yet effects on secondary outcomes remain largely unexplored. This study investigates the impact of vocational rehabilitation on the utilization of emergency, ambulatory care and inpatient services in individuals with a mental illness.

Methods: Using a repeated measures study design, the utilization of health services by individuals with a mental illness (n= 37) was compared before and during their engagement in training and employment at a social enterprise - a form of vocational rehabilitation.