Publications by authors named "Y van der Linden"
Article Synopsis
- Many patients with advanced cancer are initially unaware of their limited prognosis, but awareness increases significantly in the last year of life, rising from 15% to 40%.
- The study involved 801 deceased patients who completed follow-up questionnaires, revealing that most changes in prognosis perception occur in the last 6 months of life.
- Understanding their prognosis can encourage patients to engage in end-of-life discussions, emphasizing the need to explore individual preferences for care, even if some prefer not to know their prognosis.
Background: For patients with metastatic bladder cancer (mBC) palliative chemotherapy is one of the main treatment options. Real-world insights into outcomes are available, but a comprehensive overview of specific treatment details like number of chemotherapy cycles received and (reasons for) adjustments is lacking.
Methods: A population-based study was conducted, including all patients diagnosed with mBC in the Netherlands between 2016 and 2021 who started chemotherapy as initial treatment.
Objectives: In palliative care, it is important for family caregivers to spend time with and care for the patient, and to receive (in)formal support. These elements were compromised during the Covid-19-pandemic. This study investigates what family caregivers of non-Covid-19-patients in the palliative phase shared online during the first wave of the pandemic, and what their communicative intentions were with posting online.
View Article and Find Full Text PDFObjectives: To explore the common ground of what family caregivers need in their various roles (caregiver, care recipient and patient's partner, child or friend) from healthcare professionals across healthcare settings and disease trajectories.
Design: Interviews were conducted with family caregivers of patients with life-threatening diseases who were treated at home, in hospitals, nursing homes or hospices between 2017 and 2022. Reflexive thematic analysis was performed.
Insight into patients' personal values, wishes, and needs (VWN) by clinicians is essential to guide appropriate palliative care. To gain insight into the exploration and monitoring of the VWN of patients with advanced cancer during the illness trajectory by hospital oncology clinicians. A generic qualitative study was conducted from February 2022 to July 2022.
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