Publications by authors named "Y El Miedany"
Development of a core domain set for nailfold capillaroscopy reporting.
Reumatol Clin (Engl Ed)
August 2024
Article Synopsis
- Nailfold capillaroscopy (NFC) is a non-invasive technique that helps evaluate microangiopathy and has important diagnostic and prognostic implications for patients with Raynaud's phenomenon.
- The study aimed to create a standardized NFC report template by gathering expert consensus on essential domains through a Delphi questionnaire process involving two rounds of feedback from specialists.
- The final report template, developed from international expert input, meets an 80% approval threshold and can be utilized in both clinical practice and research within rheumatology.
Article Synopsis
- - The study aimed to establish and validate specific cutoff values for the systemic Juvenile Arthritis Disease Activity Score 10 (sJADAS10) to differentiate between various disease activity levels in children with systemic juvenile idiopathic arthritis.
- - Researchers used data from 400 patients across multiple countries, applying different methods to determine these cutoffs, ensuring robust validation through comparison of physician assessments.
- - The identified cutoffs were found to effectively separate inactive disease, minimal disease activity, moderate disease activity, and high disease activity, making them reliable for clinical use and research purposes.
Objective: To gain consensus on the definitions and descriptions of the domains of the Outcome Measures in Rheumatology (OMERACT) core domain set for rheumatology trials evaluating shared decision making (SDM) interventions.
Methods: Following the OMERACT Handbook methods, our Working Group (WG), comprised of 90 members, including 17 patient research partners (PRPs) and 73 clinicians and researchers, had six virtual meetings in addition to email exchanges to develop draft definitions and descriptions. The WG then conducted an international survey of its members to gain consensus on the definitions and descriptions.
Objectives: Shared decision making (SDM) is a central tenet in rheumatic and musculoskeletal care. The lack of standardization regarding SDM instruments and outcomes in clinical trials threatens the comparative effectiveness of interventions. The Outcome Measures in Rheumatology (OMERACT) SDM Working Group is developing a Core Outcome Set for trials of SDM interventions in rheumatology and musculoskeletal health.
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