Understanding Patient Experience in Biliary Tract Cancer: A Qualitative Patient Interview Study.

Introduction: Patients living with biliary tract cancer (BTC) experience a decline in health-related quality of life (HRQoL). This study aimed to obtain a comprehensive understanding of the patient experience of BTC-related signs/symptoms and the impacts of these on daily functioning and HRQoL.

Methods: Patients with BTC participated in qualitative semi-structured concept elicitation interviews.

Understanding the patient experience in hepatocellular carcinoma: a qualitative patient interview study.

Purpose: This study aimed to elucidate the patient experience of hepatocellular carcinoma (HCC) to guide patient-centered outcome measurement in drug development.

Methods: Patients with HCC participated in qualitative interviews to elicit disease-related signs/symptoms and impacts, using discussion guides developed from literature searches and discussions with oncologists. Interview participants rated the disturbance of their experiences (0-10 scale).