Mapping of Health Care Providers for People with Rare Diseases - From Vision to Implementation.

se-atlas - the health service information platform for rare diseases - is part of the German National Action Plan for People with Rare Diseases. The website www.se-atlas.

Vision and challenges of a cartographic representation of expert medical centres for rare diseases.

In Germany, many highly specialized facilities for the diagnosis and treatment of rare diseases exist. However it is quite difficult for patients to find the required specialists because of the fact that information on the internet is scattered and of variable quality. The German Federal Ministry of Health initiated several activities to address this issue.