Publications by authors named "Waleska Santiago-Datil"

Article Synopsis
  • * This study analyzed financial toxicity (FT) among 38 patients with advanced ovarian cancer, finding that 24% reported clinically significant FT, influenced by factors like income, employment status, and place of birth.
  • * The research highlights the need for further studies with larger and more diverse samples to better address the financial challenges faced by these patients and to develop effective interventions.
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Article Synopsis
  • Palliative care helps people with serious illnesses feel better and get support, but many patients with advanced ovarian cancer don't use it.
  • We interviewed patients and did surveys to find out why they aren't getting palliative care, discovering barriers like knowledge, attitudes, and insurance issues.
  • Most patients knew about palliative care, but many thought they didn't need it or believed it was only for when treatments had stopped, showing a need for better education and support.
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To assess training needs for providers who care for adolescent and young adult (AYA) lesbian, gay, bisexual, transgender/queer questioning (LGBTQ) cancer patients, we conducted a mixed-method survey. During their cancer care experience, AYA cancer patients experience physical, psychosocial, and reproductive health challenges. In addition to these challenges, AYA LGBTQ individuals are a diverse and medically underserved population who experience unique challenges and disparities in medical care.

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This article describes the development of the LGBTQ Oncofertility Education (LOvE-ECHO). The Enriching Communication skills for Health professionals in Oncofertility (ECHO) team created this new education module in response to the needs of oncology allied health professionals to provide inclusive and affirming care to lesbian, gay, bisexual, transgender, and queer (LGBTQ) AYA patients with cancer. The new module is part of the ECHO, a web-based educational training program for oncology allied health professionals to improve communication with AYA about reproductive health.

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Purpose: AYAs with cancer have unique psychosocial needs, with reproductive health being a primary concern. The ECHO training program provides reproductive health communication training to individuals providing care for AYAs with cancer. The purpose of this project is to describe the growth of ECHO and evaluate changes in learner engagement over a 5-year period.

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While fertility is a widely studied public health issue, infertility among college students is rarely examined. Research on fertility among college students focuses primarily on pregnancy prevention. Often constructed as hyper-fertile, cohorts of women in graduate studies are struggling with fertility issues and left to suffer in silence.

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Synopsis of recent research by authors named "Waleska Santiago-Datil"

  • - Waleska Santiago-Datil's recent research primarily focuses on the psychosocial and financial challenges faced by patients with advanced ovarian cancer, emphasizing the financial toxicity that this population experiences due to expensive personalized therapies.
  • - The author explores barriers to accessing palliative care for patients with advanced ovarian cancer, highlighting significant under-utilization of these services despite the presence of debilitating treatment side effects.
  • - Research also addresses the unique needs of LGBTQ adolescent and young adult cancer patients, including a multi-method survey of healthcare providers and the development of a web-based cultural competency training module to enhance inclusive care practices.