J Pain Symptom Manage
May 2021
Context: Relatives of patients receiving palliative care are at risk for psychological and physical distress, and their perception of quality of care can influence patients' quality of life.
Objectives: The purpose of this study was to develop and validate the QUALI-PALLI-FAM questionnaire (QUAlity of PALLIative car from FAMilies' perspective) to measure families' perception of and satisfaction with palliative care.
Methods: An exploratory factor analysis was conducted, and we evaluated the questionnaire's internal consistency using Cronbach's alpha, its stability across various strata, and the correlation between the QUALI-PALLI-FAM (factors, total score, and global satisfaction) and the total score of the FAMCARE (FAMily satisfaction with CARE) questionnaire.
Background: Indicators for the quality of palliative care are a priority of caregivers and managers to allow improvement of various care settings and their comparison. The involvement of patients and families is of paramount, although this is rarely achieved in practice. No validated assessment tools are available in French.
View Article and Find Full Text PDFThe place of users in the health care system has evolved towards their greater involvement in health institutions. International models have led France to recognise patients' experience and to develop a partnership with caregivers. Adapted methods favour the emergence and consideration of the opinion of those receiving the care, help to open up the debate and develop actions more in line with patients' needs.
View Article and Find Full Text PDFThe French Federation of Regional and Territorial Bodies for the Improvement of Health Practices and Organisations and the French National Authority for Health have produced a guide and tools devoted to the promotion of compassionate care in health institutions. The assessment of the use of the guide has shown increasing awareness of compassionate care on the part of institutions but a paradoxical exclusion of users from the approaches undertaken. An analysis of the reasons for this partial achievement of the objectives has resulted in a revision of the working methods and opens up new perspectives for development.
View Article and Find Full Text PDFA criterion concerning quality of life at work was introduced into the V2010 French National Authority for Health (HAS) certification handbook. The HAS has developed programmes to ensure this dimension is included in projects for developing healthcare institutions and in the organisation of care.
View Article and Find Full Text PDFBackground: The quality of palliative care is the foremost preoccupation of clinicians, decision-makers, and managers as well as patients and families. Major input from healthcare professionals is required to develop indicators for the quality of palliative care, but the involvement of patients and families is also recognized as essential, even though this is rarely achieved in practice.
Aim: The objectives of this study were to identify (1) convergences and divergences in the points of view of different stakeholders (patients, families, healthcare professionals) relative to key elements of the quality of palliative care and (2) avenues for refining existing indicators of quality of palliative care.
Background: Although collaborative team models (CTM) improve care processes and health outcomes, their diffusion poses challenges related to difficulties in securing their adoption by primary care clinicians (PCPs). The objectives of this study are to understand: (1) how the perceived characteristics of a CTM influenced clinicians' decision to adopt -or not- the model; and (2) the model's diffusion process.
Methods: We conducted a longitudinal case study based on the Diffusion of Innovations Theory.
The increase in the number of elderly people requires a reorganization of patient care based on integrated networks of healthcare and community services. These services enable patients to remain at home, thus avoiding the significant costs incurred as a result of long hospital stays and numerous visits to emergency departments. Despite the interest of policy-makers in integrated services, the real impact of gerontological networks remains unknown.
View Article and Find Full Text PDFAims: To characterize determining factors for compliance with colonoscopy recommendations in the familial screening of colorectal cancer through exploration of individual psychosociological factors and issues relating to patient/physician/sibling communication.
Methods: A qualitative approach involving a review of the literature and interviews with general practitioners, specialists, patients, and their siblings.
Results: A confrontation of the content of interviews with data from the literature made it possible to confirm the relevance of classic prevention models, the Health Belief Model and the Theory of Planned Behavior in the French cultural and healthcare environments, as well as their ability to identify the main individual factors liable to motivate or to discourage familial screening.