Publications by authors named "V Burgers"
Article Synopsis
- - The study examines the challenges faced by informal caregivers of adolescent and young adult (AYA) cancer patients with uncertain or poor prognoses (UPCP), highlighting the emotional and physical stress experienced by parents, siblings, friends, and partners.
- - Caregivers reported significant issues such as sleep problems, fear, loss, and altered family dynamics, which affected their relationships and social interactions.
- - Despite the high level of caregiver burden, the study suggests that tailored interventions considering the unique needs of this age group could help alleviate some of the challenges faced by these caregivers.
Article Synopsis
- * Through interviews with 46 AYAs, four key pillars for a positive healthcare experience were identified: trust, tailored communication, an empathetic attitude, and proactive care.
- * The findings suggest that both age-specific issues and those related to the cancer prognosis must be addressed in clinical practice to improve care, indicating a need for better training and resources for healthcare professionals while empowering AYAs in managing their health.
Article Synopsis
- The study explores the importance of involving adolescents and young adults (AYA) with uncertain and poor cancer prognoses (UPCP) as partners in health research, documenting their experiences and the impact of their involvement.* -
- Six AYAs participated in various research roles, such as initiating study topics, conducting interviews, and analyzing data, ensuring the relevance of the research to their peers.* -
- Involving AYAs in research benefited both the study outcomes and the participants, who felt valued and understood, while also presenting challenges that researchers should proactively address.*
Introduction: Adolescents and young adults with an uncertain or poor cancer prognosis (UPCP) are confronted with ongoing and unique age-specific challenges, which forms an enormous burden. To date, little is known about the way AYAs living with a UPCP cope with their situation. Therefore, this study explores how AYAs with a UPCP cope with the daily challenges of their disease.
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