Publications by authors named "Tracey Johnson-Glover"
Article Synopsis
- Many biobanks and epidemiological studies are now revealing genetic results to participants, particularly those involved in the NIH's All of Us Research Program, but challenges arise for underrepresented groups like individuals of African descent.
- There's a significant lack of research on drug-gene interactions for these groups, which leads to uncertainty when participants receive their genetic risk information.
- The report emphasizes the need for tailored disclosure protocols by summarizing studies that identify key themes from African Americans' perspectives, recommending strategies like improved education and personalized support to enhance the return of genetic results.
Background: There is a lack of African American (AA) community engagement in genomic medicine research. Recent popular interest in the experience of AAs, such as that of Henrietta Lacks, has perhaps prompted interest in research on how AA nurses can provide strategies to better engage AA communities in genomic medicine research.
Methods: The authors conducted one-on-one semi-structured interviews with 11 National Black Nurses Association (NBNA) chapter leaders from 8 different US states, representing 782 NBNA members.
Genomic medicine research is an important topic in the African American health care community. African American nurses and advance practice nursing professionals are poised to encourage and educate themselves and their communities about the importance of diversity in genomic medicine research. The Southern Nevada Black Nurses Association, a chapter within the larger National Black Nurses Association's, recently engaged in the National Institutes of Health research program to educate their members about formularies and other treatment modalities that could clinically benefit African-Americans and other populations of color.
View Article and Find Full Text PDF