Przegl Epidemiol
October 2021
Background: Pediatric palliative care applies to the conditions specified in the Regulation of the Minister of Health. The previous studies have proved that the conditions' catalogue is incomplete and inadequate.
Aim Of Study: The aim of the study was to verify completeness and adequacy of the Minister of Health's catalogue and to develop a new catalogue based on available epidemiological data concerning the Polish population.
Aim: Evaluation of pediatric palliative home care of families with children suffering from neurodegeneration with brain iron accumulation (NBIA) and their parents.
Material And Methods: The children were treated at home by a multidisciplinary team. Densitometry was used to evaluate the condition of the skeletal system.