Publications by authors named "Tiny Jaarsma"

Unlabelled: Thirst is a common symptom in patients with heart failure (HF), which can cause a high degree of distress. Increased fluid intake due to thirst can lead to clinical deterioration because of shifts in volume status. The thirst assessment should be included in routine patient follow-up; however, only a limited set of validated instruments are available.

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Health care systems are confronted with an increasing burden of (multi-)morbidity and a shortfall of healthcare providers. Coordination and continuity of care in chronic and multi-morbid patient is especially important. As qualitative patient experience data within care processes is scarce, we aim to increase the understanding of chronically ill patient's perspectives by assessing patient experiences in different health systems while treated in primary care.

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Effective recruitment and retention of participants in clinical research studies are critical to be able to draw meaningful and valid conclusions in research studies. However, there are multiple challenges related to communication, generalizability, and logistics. Researchers must address and overcome these challenges to ensure robust research outcomes.

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Thorough consideration of user experiences and the weighing of advantages and disadvantages are essential when implementing new technology in clinical practice. This article describes a primary care nurse's experience using two technologies to monitor lung congestion in six patient cases: a remote dielectric sensing device for non-invasive lung fluid measurement and a portable handheld ultrasound device. Both can support decision-making when assessing lung congestion in heart failure patients.

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Article Synopsis
  • The study investigated how exergaming and medical yoga affect various health outcomes in heart failure patients, focusing on exercise capacity, fatigue, shortness of breath, quality of life, depression, and anxiety.
  • 104 participants were randomized into three groups: exergaming, medical yoga, and a control group, with no significant differences found between groups on most measures; however, exergaming improved physical health metrics while medical yoga enhanced emotional well-being.
  • Both exergaming and medical yoga showed positive effects compared to the control group, with the control group's well-being declining over the 3-month intervention period.
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Good self-care can improve survival, decrease health care costs, and improve quality of life of persons with cardiovascular illness. Health care professionals from different disciplines have a role in self-care support. Many definitions, theories, and measurement instruments exist addressing self-care and this plethora might be confusing to clinicians and researchers.

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Atrial fibrillation (AF) remains the most common cardiac arrhythmia worldwide and is associated with significant morbidity and mortality. The European Society of Cardiology (ESC)/European Association for Cardio-Thoracic Surgery (EACTS) have recently released the 2024 guidelines for the management of AF. This review highlights 10 novel aspects of the ESC/EACTS 2024 Guidelines.

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Aims: To describe the clinical practice and educational preparation of heart failure (HF) nurses across Europe and determine the key differences between countries.

Methods And Results: A survey tool was developed, in English, by the Heart Failure Association Patient Care committee of the European Society of Cardiology (ESC). It was translated into eight languages, before electronically disseminated by nurse ambassadors, presidents of HF national societies and through social media.

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Background: Appropriate assessment of fluid status of patients with heart failure (HF) is challenging in outpatient settings, e.g. primary care, especially among elderly HF patients with multiple comorbidities.

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Background: In recent years, there has been an exponential increase in attention paid to the patient-reported outcome of self-care. Many investigators have used one of the families of self-care instruments freely available on the website www.self-care-measures.

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Interviewing participants on sensitive topics is challenging and requires carefully planned and executed strategies throughout the research process. Sensitive topics have the potential to cause distress to participants or researchers. In this methods paper, strategies for conducting interviews on sensitive topics are described, including choosing the appropriate interview approach, creating a safe and comfortable environment, building rapport, utilizing sensitive and open questioning, reflexivity of the researcher, and awareness of the potential therapeutic effect of the interviews on participants.

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Increasingly, studies use social media to recruit, enroll, and collect data from participants. This introduces a threat to data integrity: efforts to produce fraudulent data to receive participant compensation, e.g.

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Article Synopsis
  • * Four key themes emerged: unclear responsibilities among stakeholders, concerns about safety and patient security, the importance of involving users in the development and adoption processes, and the idea that telemedicine complements traditional care rather than replaces it.
  • * While telemedicine shows promise for heart failure management, its limited adoption is tied to existing care systems; enhancing collaboration and establishing clear roles could improve confidence and effectiveness in using telemedicine.
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Physical activity is important for everyone to maintain and improve health, especially for people with chronic diseases. Mobile exergaming has the potential to increase physical activity and to specifically reach people with poor activity levels. However, commercial mobile exergames are not specially designed for older people with chronic illnesses such as heart failure.

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Article Synopsis
  • Telemedicine shows promise in managing heart failure (HF), but studies yield mixed results, making it difficult to form clear guidelines.
  • A scoping review of 15 randomized controlled trials (RCTs) with varied HF patient subgroups revealed inconsistent findings on which patients benefit most from telemedicine.
  • Differences in subgroup definitions, study demographics, and the need for ongoing real-world evidence highlight the importance of continuous monitoring to optimize telemedicine strategies in HF management.
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Reducing inactivity in patients with chronic disease is vital since it can decrease the risk of disease progression and mortality. Exergames are an innovative approach to becoming more physically active and positively affecting physical health outcomes. Serious games are designed for purposes beyond entertainment and exergames are serious games for physical activity.

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Aim: To describe nurses' experiences of ethical challenges in relation to thirst in terminally ill patients in specialist palliative care units.

Research Design: A qualitative, reflexive thematic design with an inductive analysis was used.

Participants And Research Context: Eighteen qualitative interviews with nurses working in six different specialist palliative care units in different hospitals in Sweden were conducted.

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Background: Thirst is the body's natural urge to replenish fluids in response to a deficiency in hydration. Patients at the end of life gradually lose their independence and reach a point where they become unable to express their needs and can no longer drink on their own. In palliative care, the main advice is to provide regular oral care to relieve symptoms such as dry mouth and thirst.

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Article Synopsis
  • The study investigates how patients with hypertension perceive the differences between their self-reported medication adherence and the actual adherence confirmed by chemical testing, revealing a disconnect between perception and reality.* -
  • Thirteen patients underwent interviews that highlighted six themes related to their feelings and reactions to adherence testing, including frustration, discomfort, shame, and a desire for communication with healthcare providers.* -
  • The findings suggest that clinicians should recognize the varying emotional responses to nonadherence and improve communication strategies to better support patients in managing their hypertension.*
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Purpose Of Review: To evaluate the feasibility of exergaming among older adults, focusing on acceptability, demand, implementation, and practicality. Additionally, to offer practical implications based on the review's findings.

Recent Findings: Exergaming is a safe for older adults, potentially increasing physical activity, balance, cognition, and mood.

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Article Synopsis
  • Heart transplantation (HTx) has been around for over 50 years, yet there's a lack of guidelines for post-transplant prevention and rehabilitation practices.
  • The statement emphasizes the need for tailored prevention and rehabilitation programs that consider both modifiable and non-modifiable factors to enhance the physical capacity and quality of life for HTx recipients.
  • It advocates for a multidisciplinary approach involving all members of the HTx team to support patients throughout their recovery journey, highlighting the importance of starting these programs early after transplantation.
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Article Synopsis
  • The text highlights a lack of knowledge and guidelines on physical activity and lifestyle measures for heart transplantation (HTx) recipients, despite the procedure's long history.
  • It emphasizes the need for tailored prevention and rehabilitation strategies to enhance physical capacity, quality of life, and survival for these patients.
  • The statement calls for a multidisciplinary approach to care, starting early post-transplant and continuing throughout the patients' journey, as HTx recipients have unique rehabilitation needs compared to other heart-related patients.
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