Occupational engagement, fatigue, and upper and lower extremity abilities in persons with melorheostosis.

Introduction: Melorheostosis is a rare bone disorder with limited literature that describes the effect of this disease on functional and motor abilities. As part of a natural history study, four outcome measures were administered to better understand the burden this disease has on a person's ability to engage in basic and instrumental activities of daily living.

Objective: To investigate the relationship between functional engagement, fatigue, and motor ability in patients with melorheostosis.