Publications by authors named "Thuy V Lu"
Comparing research attitudes in Down syndrome and non-Down syndrome research decision-makers.
Alzheimers Dement (N Y)
July 2024
Article Synopsis
- The study investigates recruitment challenges faced by decision-makers for individuals with and without Down syndrome (DS), emphasizing the need to understand differing research attitudes to avoid sample bias.* ! -
- Using data from two registries, the study compares Research Attitudes Questionnaire (RAQ) scores between non-DS decision-makers and family decision-makers of individuals with DS.* ! -
- Although overall RAQ scores were similar, the study found that DS decision-makers expressed a greater sense of responsibility to help others but were less optimistic about medical research curing major diseases in their lifetime.* !
Background: In randomized clinical trials (RCTs), monitoring adverse events (AEs) and serious AEs (SAEs) is critical. All Alzheimer's disease (AD) RCTs require participants to enroll with a study partner.
Objective: We examined AE reporting rates in mild-to-moderate AD trials and their associations with study partner type.