Co-Production of the 'My SJS Passport' to Support Survivors of Stevens-Johnson Syndrome (SJS) Post Diagnosis and Beyond - A Proof of Concept Study.

Background: Stevens-Johnson syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are life-threatening reactions that cause blistering of the skin and mucous membranes. Survivors can experience long term physical and psychological complications. The 'My SJS Passport' was co-produced by the Patient and Public Involvement group and research team at the Wolfson Centre for Personalised Medicine to improve the care and experiences of survivors.