An exploration of quality of life and the experience of living with home parenteral nutrition.

Introduction: The aim of this research was to achieve a deeper understanding of the experience of adults living with home parenteral nutrition (PN) and to define their quality of life (QOL).

Methods: The research design was qualitative, using content and interpretative phenomenological analysis. The sample included adults with intestinal failure, stratified by length of home PN dependency.

Home care in the last year of life: family member perceptions of unmet need associated with last place of care.

Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death.

Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview.