The aims of the current study were to better understand, from the perspective of adolescents and young adults (AYAs) with sarcoma, parents, and providers, the friendship support needs of AYAs with bone and soft tissue sarcoma and the role of social media in facilitating social support for AYAs with sarcoma. Semistructured interviews were conducted with 21 participants. AYA ( = 10) ranged in age from 14 to 23 years (mean 19.
View Article and Find Full Text PDFTo assess the feasibility and acceptability of Making Friends with Yourself (MFY): A Mindful Self-Compassion Program for Teens and Young Adults with a sample of college students. A secondary objective was to explore changes in psychosocial outcomes. Twenty-five students (23 females; mean age 20.
View Article and Find Full Text PDFCompassion- and mindfulness-based interventions (CMBIs) and therapies hold promise to support parent resilience by enabling adaptive stress appraisal and coping, mindful parenting, and perhaps crucially, self-compassion. These contemplative modalities have recently been expanded to parents of children with chronic illness, building on successful applications for adults facing stress, chronic pain, or mental illness, and for healthcare professionals in response to caregiver burnout resulting from their work. The design and adaptation of interventions and therapies require a conceptual model of parent resilience in the context of childhood chronic illness that integrates mindfulness and compassion.
View Article and Find Full Text PDFRecruiting diverse samples for prevention trials is challenging, but essential. This paper provides baseline data for four racial/ethnic groups from a randomized controlled trial of a mobile-based prevention intervention and systematically reviews recruitment trends in diversity across technology-based prevention studies. Female emerging adults completed measures of appearance esteem, body image flexibility, appearance comparison, and self-compassion.
View Article and Find Full Text PDFBackground: Approximately 70,000 adolescents and young adults (AYA) are diagnosed with cancer each year in the United States. Sarcomas carry a particularly high symptom burden and are some of the most common cancers among AYA. Recent work has documented significant levels of unmet needs among AYA with cancer, particularly the need for psychosocial support.
View Article and Find Full Text PDFObjective To conduct a single-arm pilot study assessing the feasibility and acceptability of a 30-day parent-focused mindfulness and psychosocial support mobile app intervention for parents of children with chronic pain. Methods Thirty parents completed the intervention, which included a mindfulness curriculum, peer support videos, and written psychoeducational content. Twelve healthcare providers also assessed the app and provided feedback.
View Article and Find Full Text PDFObjective: The goal of the study was to describe the experiences of adolescents with irritable bowel syndrome (IBS) from the perspective of adolescents, their parents, and health care providers who treat adolescents who have IBS.
Design: The study consisted of semistructured interviews.
Setting: Participants were recruited from multidisciplinary pain clinics.
The aim of the study was to test the feasibility of a mindfulness and self-compassion based program for adolescents, to be delivered though mobile phones. Twenty racially and ethnically diverse US adolescents enrolled in a study to use the app for 30 days, after which they provided satisfaction data and participated in focus groups to describe their experiences and offer suggestions for improving the app. Usage data were also captured.
View Article and Find Full Text PDFThis study tested the efficacy of an Internet-based health promotion program, BodiMojo, designed to promote positive body image in adolescents. Participants were 178 students (mean age 15.2 years, 67.
View Article and Find Full Text PDFObjective: Inadequate fruit and vegetable (FV) consumption signals a need for identifying predictors and correlates of intake, particularly in diverse adolescents.
Design: Participants completed an on-line assessment in early 2010.
Setting: Computer classrooms in 4 high schools.
Background: The goal of this project was to identify the educational needs of menopausal women and test the feasibility of an online self management program based on social learning theory.
Methods: The four stages included 1) a needs assessment using a) focus groups with 24 women ages 40 to 55 and b) phone interviews with eight health experts; 2) the use of concept mapping methodology for quantifying qualitative data from stage 1 to identify the core programmatic concepts; 3) development of a demonstration program; and 4) a pilot study with 35 women and 9 health experts to assess knowledge gained and program satisfaction.
Results: Results show that women desire more information about normalcy of menopause and symptom management and found the program to meet a need for menopausal education otherwise perceived as unavailable.
This study tested the efficacy of an Internet-based prevention program, Trouble on the Tightrope: In Search of Skateboard Sam, on pubertal knowledge, body esteem, and self-esteem. One hundred and ninety participants (mean age 11.6 years) were randomized to either an intervention or attention placebo control condition and were assessed at baseline, after three Internet-based sessions, and at 3-month follow-up.
View Article and Find Full Text PDFObjective: MyStudentBody.com-Nutrition (MSB-N) is an internet-based nutrition and physical activity education program for college students.
Method: Students from six universities (N=476) in the U.
Background: The study goal was to develop and test the effectiveness of a brief online education and support program for female infertility patients.
Methods: A randomized-controlled trial was conducted. Using a Solomon-four group design, 190 female patients were recruited from three US fertility centers and were randomized into two experimental and two no-treatment control groups.
The inability to conceive children is experienced as a stressful situation by individuals and couples all around the world. The consequences of infertility are manifold and can include societal repercussions and personal suffering. Advances in assisted reproductive technologies, such as IVF, can offer hope to many couples where treatment is available, although barriers exist in terms of medical coverage and affordability.
View Article and Find Full Text PDFResearchers have traditionally relied on self-report questionnaires to assess psychological well-being, but such measures may be unable to differentiate individuals who are genuinely psychologically healthy from those who maintain a facade or illusion of mental health based on denial and self-deception. Prior research suggests that clinically derived assessment procedures that assess implicit psychological processes may have advantages over self-report mental health measures. This prospective study compared the Early Memory Index, an implicit measure of mental health/distress, with a range of familiar self-report scales as predictors of physical health.
View Article and Find Full Text PDFObjective: To develop and validate a scale of perceived self-efficacy for people coping with infertility treatment.
Design: Self-efficacy scale development involved: [1] item generation with medical experts in reproductive health; [2] a principal components analysis with varimax rotation to identify underlying item components; [3] test-retest reliability and construct (convergent and discriminant) validity with infertility patients, who were administered the Infertility Self-Efficacy (ISE) scale with other measures; and [4] expert acceptability, as determined by reproductive health professionals.
Setting: Recruitment at a fertility center, a national infertility organization, and medical trials web pages.
A content analysis was conducted on two on-line menopause message boards over 18 months, before and after the announcement of the Women's Health Initiative (WHI) study results on hormone therapy risks. Messages (N = 785) were coded based on overall context themes and specific content (N = 1132 codes). Results showed that "seeking symptom advice" about physical symptoms represented half (49%) of all codes.
View Article and Find Full Text PDFEval Program Plann
February 2006
College students have poor nutrition habits and often exhibit at-risk weight control behaviors; yet, health promotion efforts on campuses often target other risk behaviors such as alcohol and tobacco use. The goal of this study was to determine program content and examine the feasibility of a web-based nutrition education program for college students using innovative applications of tailoring, targeting and personalization of information. Comprehensive program planning entailed three phases: focus groups and use of concept mapping methodology, prototype web program development, and feasibility testing of the prototype.
View Article and Find Full Text PDFJ Am Coll Health
December 2004
It is well established in the literature that college students have poor eating habits and that many barriers exist to achieving optimal nutrition for this busy population. Little is known about students' perceptions of this problem or suggestions for improving their dietary habits. Similarly, college health professionals need innovative approaches to nutritional education.
View Article and Find Full Text PDFObjective: To develop and test the feasibility of a theory-driven, psychosocial support CD-ROM prototype for couples in infertility treatment.
Design: Focus group meetings with reproductive health experts, semistructured interviews with infertility patients, and content analysis of an infertility message board to determine content domains of the CD-ROM. Usability and acceptance testing of prototype CD-ROM based on predetermined feasibility criteria.