Publications by authors named "T H Strong"

Background: Prader-Willi syndrome (PWS), a genetic neurodevelopmental disorder, is characterized by hyperphagia and significant behavioral problems. Hyperphagic individuals with PWS are chronically hungry yet rarely feel sated, and often engage in food-seeking behaviors. To avoid life-threatening obesity in their children, families implement food security strategies (e.

View Article and Find Full Text PDF

Prader-Willi syndrome (PWS) is a genetic disorder associated with baseline respiratory impairment caused by multiple contributing etiologies. While this may be expected to increase the risk of severe COVID-19 infections in PWS patients, survey studies have suggested paradoxically low disease severity. To better characterize the course of COVID-19 infection in patients with PWS, this study analyses the outcomes of hospitalizations for COVID-19 among patients with and without PWS.

View Article and Find Full Text PDF

Background: Prader-Willi syndrome (PWS) is a genetic disorder characterised by hyperphagia, intellectual disability and increased propensity to a range of medical disorders. To better characterise the clinical presentation of PWS across the lifespan, this study reports on the demographics and clinical diagnosis of individuals with PWS hospitalised in the United States.

Methods: The National Inpatient Sample, an all-payor administrative claims database of hospitalisations in the United States, was queried for patients with a coded diagnosis of PWS from October 2019 through December 2021.

View Article and Find Full Text PDF
Article Synopsis
  • - Prader-Willi syndrome (PWS) is a genetic disorder due to missing genes on chromosome 15, leading to excessive eating, behavior issues, and varying intellectual disability, making early diagnosis and communication tricky for families.
  • - A study investigated how parents of children with PWS share the diagnosis with their kids, using surveys and interviews from 51 parents, revealing that 90% had disclosed some information based on their knowledge and their child's age or presence of siblings.
  • - The analysis identified 15 themes on parents' motivations and methods for disclosing the diagnosis, offering insights for others facing similar situations with rare conditions.
View Article and Find Full Text PDF

Background: Prader-Willi syndrome (PWS) is a genetic disorder associated with baseline respiratory impairment caused by multiple contributing etiologies. While this may be expected to increase the risk of severe COVID-19 infections in PWS patients, survey studies have suggested paradoxically low disease severity. To better characterize the course of COVID-19 infection in patients with PWS, this study analyzes the outcomes of hospitalizations for COVID-19 among patients with and without PWS.

View Article and Find Full Text PDF