Publications by authors named "Suzanne Gaglianone"
Article Synopsis
- - The study aimed to overcome barriers in returning individual and aggregate clinical trial data to parents of children in clinical trials, emphasizing the challenges posed by data ownership and confidentiality concerns.
- - The pilot involved a biotech company that obtained ethics approval to allow parents across six countries to request their child's study results through a coordinator, ensuring proper consent and data protection measures were followed.
- - Surveys sent to participating parents revealed a strong interest in receiving as much data as possible, highlighting the demand for transparency in clinical trial outcomes.
