Publications by authors named "Suzanne Amery"

Background: When faced with treatment options, patients are asked to participate in decision-making. We sought to determine which treatment aspects matter most for individuals treated for muscle invasive bladder cancer (MIBC), with an aim to improve understanding of patient preferences and what trade-offs patients are willing to accept. Our study consisted of a discrete choice experiment (DCE): a type of questionnaire used to elicit preferences in the absence of real-world choice.

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Purpose: The Graham Roberts Study was initiated in 2018 and is the first Trials Within Cohorts (TwiCs) study for bladder cancer. Its purpose is to provide an infrastructure for answering a breadth of research questions, including clinical, mechanistic, and supportive care centred questions for bladder cancer patients.

Participants: All consented patients are those aged 18 or older, able to provide signed informedconsent and have a diagnosis of new or recurrent bladder cancer.

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Article Synopsis
  • Bladder cancer is a serious type of cancer that affects many people, and those with it often feel worse than people with other types of cancer.
  • To help improve the feelings and quality of life of bladder cancer patients, researchers created a special program focusing on their mental, sexual, and physical health.
  • They worked together with patients and doctors to design this well-being program, hoping it would help more patients learn about and use the services available to them, which could make their lives better.
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Introduction: Physical activity (PA) interventions have been introduced in patients with cancer as they may contribute to better treatment outcomes and quality of life (QoL). However, little is known about the impact of PA on patients with bladder cancer (BC). This scoping review aimed to explore efficacy and feasibility of existing PA interventions in the BC care pathway.

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Article Synopsis
  • The study looked at how bladder cancer and its treatment affect the mental health of patients and the effectiveness of ways to help them feel better.
  • Researchers found a lot of studies, but most focused on prostate and kidney cancer, not bladder cancer.
  • They found that group and couple therapy helped reduce feelings of depression, but more research is needed to understand how to best support bladder cancer patients' mental health.
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  • Bladder cancer treatment can affect sexual health, but doctors often don't check on this for their patients as much as they should.
  • A study reviewed past research, finding that most participants were middle-aged and that many studies focused only on certain types of bladder cancer.
  • There's a growing need for better ways to measure sexual health in bladder cancer patients, so more research is needed to create effective questionnaires that can help improve their quality of life.
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Introduction: Given the need for more bladder cancer research and the recently observed advantages of introducing the trials within cohort (TwiCs) design, the set-up of the Graham Roberts Study (Roberts Study) will provide valuable infrastructure to answer a wide variety of research questions of a clinical, mechanistic, as well as supportive care nature in the area of bladder cancer.

Methods: Using the TwiCs design, we will recruit patients aged 18 or older who are willing and able to provide signed informed consent and have a diagnosis of new or recurrent bladder cancer into this prospective cohort study. All patients must have a basic understanding of the English language.

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Purpose: Sequential bacillus Calmette-Guérin/electromotive drug administration of mitomycin C is reported to be superior to bacillus Calmette-Guérin alone but it has not been widely adopted. We aimed to determine the efficacy and tolerability of sequential bacillus Calmette-Guérin/electromotive drug administration of mitomycin C in high risk, nonmuscle invasive bladder cancer.

Materials And Methods: Starting in 2009 bacillus Calmette-Guérin/electromotive drug administration of mitomycin C was introduced as the standard induction regime in patients with high risk, nonmuscle invasive bladder cancer undergoing bladder conservation.

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