Publications by authors named "Susan Charlifue"
Data standards are available for spinal cord injury (SCI). The International SCI Data Sets were created in 2002 and there are currently 27 freely available. In 2014 the National Institute of Neurological Disorders and Stroke developed clinical common data elements to promote clinical data sharing in SCI.
View Article and Find Full Text PDFObjective: To develop composite measures of neighborhood economic factors for use with the national Spinal Cord Injury Model Systems (SCIMSs) database in cross-sectional and longitudinal investigations of the social determinants of health.
Design: Secondary data analysis of administrative data from the 2009, 2014, and 2019 American Community Survey (ACS) 5-year estimates and survey data collected for the SCIMS database.
Setting: Community.
Objectives: The development of venous thromboembolism (VTE) is a common complication following spinal cord injury (SCI) and brain injury (BI), leading to significant morbidity and mortality. The purpose of this study was to explore the incidence of VTE in patients with the dual diagnosis (DD) of SCI and concomitant BI using ultrasonography.
Design: Retrospective study.
Article Synopsis
- - A retrospective multi-site cohort study aimed to create a machine learning model to predict ambulatory status in spinal cord injury (SCI) patients one year after their injury, using data from the SCI Model System database collected between January 2000 and May 2019.
- - The study analyzed data from 4,523 patients, comparing traditional prediction methods with machine learning algorithms, finding that the Elastic Net Penalized Logistic Regression (ENPLR) model had the best predictive accuracy.
- - The ENPLR model showed improved performance metrics over traditional methods, indicating that machine learning could more accurately identify patients' likelihood to walk post-injury, suggesting future research could enhance these predictions by incorporating additional variables.
Study Design: International Classification of Functioning, Disability and Health (ICF) linking study.
Objective: Analyze cognitive interview data using the ICF as an analytic framework, to examine aspects of social life relevant to quality of life (QoL) according to people with spinal cord injury or disease (SCI/D). This study builds upon results of an international study about the cross-cultural validity of the International SCI QoL Basic Data Set (QoL-BDS).
Background: Residential mobility after spinal cord injury (SCI) has not been extensively examined despite a growing interest in investigating the relationship between neighborhood exposures and community living outcomes.
Objectives: This study explores residential mobility patterns, the annual move rate, and reasons for moving among a community-living sample of adults with SCI.
Methods: A survey was conducted with 690 people at six SCI Model Systems centers in the United States between July 2017 and October 2020.
Background: Chronic spinal cord injury (SCI) significantly accelerates morbidity and mortality, partly due to the increased risk of cardiometabolic diseases (CMD), including neurogenic obesity, dyslipidemia, and impaired glucose metabolism. While exercise and dietary interventions have shown some transient benefits in reducing CMD risk, they often fail to improve clinically relevant disease markers and cardiovascular events. Moreover, SCI also places caregiving demands on their caregivers, who themselves experience health and functional decline.
View Article and Find Full Text PDFBackground: The novel coronavirus (COVID-19) pandemic is disproportionately impacting the health of people with disability. Resilience has remained an important health promoting characteristic during periods of social distancing restrictions. Factors promoting resilience for people with disability under the context of the pandemic remains poorly understood.
View Article and Find Full Text PDFObjective: To derive and validate a simple, accurate CPR to predict future independent walking ability after SCI at the bedside that does not rely on motor scores and is predictive for those initially classified in the middle of the SCI severity spectrum.
Design: Retrospective cohort study. Binary variables were derived, indicating degrees of sensation to evaluate predictive value of pinprick and light touch variables across dermatomes.
Exploring perspectives on assistive technology use: barriers, facilitators, and access.
Disabil Rehabil Assist Technol
May 2024
Article Synopsis
- The study examines the experiences of Veterans and civilians with tetraplegia regarding the access and use of assistive technology (AT), highlighting both barriers and facilitators.
- Focus groups with 32 participants revealed that Veterans face unique challenges, such as lack of awareness and eligibility requirements, while civilians navigate different obstacles like device costs.
- Key benefits of using AT included enhanced independence, improved quality of life, and increased safety, emphasizing the vital role of AT for those with spinal cord injuries.
To assess the incidence and possible risk factors for venous thromboembolism (VTE) in patients admitted to a SCI rehabilitation center. Retrospective review. Acute neurorehabilitation hospital specializing in SCI.
View Article and Find Full Text PDFContext/objective: Examine the sensitivity of the International Spinal Cord Injury Quality of Life Basic Data Set V2.0 (QoL-BDS V2.0) to reflect changes in mobility and secondary health conditions (SHCs) between inpatient rehabilitation and one-year follow-up.
View Article and Find Full Text PDFStudy Design: Consensus based on the literature.
Objective: Create an International Spinal Cord Injury (SCI) Socio-Demographic Basic Data Set (Version 1.0).
Objective: To determine the incidence of VTE in the population with brain injuries (BIs) using ultrasonography, and to assess the risk of pulmonary embolism (PE) development and/or bleeding complications related to anticoagulation.
Design: Retrospective study.
Setting: Acute rehabilitation hospital.
Article Synopsis
- The study aimed to assess the cost-effectiveness of different locomotor training methods for individuals with spinal cord injuries (SCI), comparing overground robotic training and conventional training methods.
- A probabilistic analysis was performed on data from a cohort of 99 participants, measuring improvements in quality-adjusted life years (QALYs) and costs associated with each training strategy.
- Results indicated that conventional training was more cost-effective for individuals with incomplete SCI, while overground robotic training was more effective but costlier for those with complete SCI.
Background And Purpose: Predicting future outdoor walking ability after spinal cord injury (SCI) is important, as this is associated with community engagement and social participation. A clinical prediction rule (CPR) was derived for predicting outdoor walking 1 year after SCI. While promising, this CPR has not been validated, which is necessary to establish its clinical value.
View Article and Find Full Text PDFBackground: The consequences of spinal cord injury (SCI) can place significant demands on an individual's coping mechanisms. Interventions to promote psychological adjustment and coping are often included in inpatient rehabilitation programs; however, following discharge, many individuals with SCI do not receive ongoing counseling or education about psychological adjustment to disability. Effective postacute treatment models are needed to help individuals with SCI build skills that help them adapt to the stresses associated with a chronic physical disability, alleviate the consequences of anxiety and depression, and enhance subjective well-being.
View Article and Find Full Text PDFStudy Design: Expert opinion, feedback, revisions and final consensus.
Objectives: To update the International Spinal Cord Injury (SCI) Core Data Set while still retaining recommended standardization of data reporting.
Setting: International.
Study Design: Qualitative study OBJECTIVES: To explore the unique experience of facilitators, barriers, rewards, and challenges related to pet ownership after spinal cord injury (SCI).
Setting: Zoom for Healthcare videoconferencing platform hosted from an American neuro-rehabilitation hospital in Colorado.
Methods: Sixteen individuals with SCI participated in three semi-structured focus groups of 5-6 participants each.
Article Synopsis
- Social distancing measures, while crucial for controlling COVID-19, are negatively affecting the health and access to healthcare for individuals with disabilities.
- A longitudinal study of 71 people with spinal cord injuries in Victoria, Australia, revealed that lifting social distancing restrictions led to increased health problems and reduced access to services, despite some improvements in quality of life.
- The research indicates that the challenges faced by individuals with disabilities during the pandemic could be linked to limited access to health services and reduced participation in daily activities, underscoring the need for clear guidelines on essential care during lockdowns.
Objective: To examine the internal construct validity of the International Spinal Cord Injury Quality of Life Basic Data Set Version 2.0 (QoL-BDS V2.0) and compare this with the internal construct validity of the original version of the QoL-BDS.
View Article and Find Full Text PDFStudy Design: Mixed methods inquiry using cognitive interviews and thematic content analysis.
Objectives: Cross-validation of the concept of quality of life (QoL) and of the International Spinal Cord Injury Quality of Life Basic DataSet (SCI QoL-BDS) items across five sites in four countries: United States, Australia, Brazil, and the Netherlands. Analysis aimed to uncover patterns, differences, and similarities suggesting conceptual equivalence for overall QoL and the three SCI QoL-BDS items.
Study Design: Secondary analysis of cross-sectional data from a multisite survey study.
Objectives: To describe associations between residential greenspace and psychological well-being among adults living with chronic spinal cord injury (SCI).
Setting: Community.
Objective: To identify microRNA biomarkers and clinical factors associated with neuropathic pain after spinal cord injury.
Design: Cross-sectional, secondary analysis of baseline data collected from ongoing clinical studies. Using a genome-wide microRNA screening approach, we studied differential microRNA expression in serum from 43 adults with spinal cord injury enrolled in ongoing clinical studies.