Publications by authors named "Summer Choudhury"
Article Synopsis
- Outcomes after CPR are often poor, leading researchers to explore an "informed assent" (IA) approach that simplifies the decision-making process for chronic patients and their families about whether to pursue CPR, focusing on their goals of care.
- The research involved a three-stage approach, starting with focus groups to assess acceptability, followed by a pilot randomized controlled trial that indicated feasibility and some success in changing CPR preferences among participants.
- Initial findings suggest the IA framework is generally accepted but works best with hospitalized patients; ongoing research will further evaluate its effectiveness and applicability in seriously ill older adults.
Purpose: To identify specific components of ICU clinician supportive care and communication that are associated with increased post-traumatic stress disorder (PTSD) symptoms for surrogate decision makers of patients with chronic critical illness (CCI).
Methods: We conducted a secondary analysis of data from a randomized controlled trial of palliative care-led meetings to provide information and support for CCI surrogates. The primary outcome for this secondary analysis was PTSD symptoms at 90 days, measured by the Impact of Event Scale-Revised (IES-R).
Rationale: Chronically critically ill patients are often dependent on family members for surrogate decision-making, and these surrogates are at high risk for emotional distress. We hypothesized that patient- and surrogate-specific risk factors for surrogate post-traumatic stress disorder (PTSD) symptoms can be identified early in the course of chronic critical illness.
Objectives: To identify risk factors for PTSD symptoms in surrogate decision-makers of chronically critically ill patients.
Context: Patients triggering rapid response team (RRT) intervention are at high risk for adverse outcomes. Data on symptom burden of these patients do not currently exist, and current symptom management and communication practices of RRT clinicians are unknown.
Objectives: We sought to identify the symptom experience of RRT patients and observe how RRT clinicians communicate with patients and their families.
Objective: Circumstances surrounding parental availability and decision-making were examined in the setting of a research protocol involving newborn screening (NBS) for fragile X syndrome, in which the institutional review board (IRB) had determined that consent (permission) was required from both parents.
Methods: A survey was conducted with 3001 families who were approached to participate in optional NBS. In addition to basic demographics, observational notes detailed the reasons why fathers were not present or deemed "not reasonably available" (per IRB regulations), and content analysis identified the factors for this lack of availability.
Objective: The goal of this study was to document rates of parental consent in a pilot study of newborn screening for FMR1 gene expansions, examine demographic characteristics of mothers who consented or declined, describe the reasons for their decision, and discuss ethical and social aspects of the consent process.
Methods: A brief survey was used to record basic demographic data from mothers and an open-ended question was used to elicit parents' reasons for accepting or declining screening. A descriptive analysis was conducted on the number of mothers who consented to or declined screening, and a logistic regression model predicted mothers' likelihood to agree to screening based on demographic characteristics.