Producing an evidence-based treatment information website in partnership with people affected by multiple sclerosis.

Background And Aims: In earlier work, we identified that people affected by multiple sclerosis (MS) can have difficulty finding online treatment information that is up to date, trustworthy, understandable, and applicable to personal circumstances, but does not provoke confusion or negative emotional consequences. The objective was to develop online consumer summaries of MS treatment evidence (derived from Cochrane Reviews) that respond to identified treatment information needs of people affected by MS.

Methods: A 2-phase mixed-methods project, conducted in partnership with consumers and an MS organisation.

Online health information seeking: how people with multiple sclerosis find, assess and integrate treatment information to manage their health.

Background And Objective: The Internet is increasingly prominent as a source of health information for people with multiple sclerosis (MS). But there has been little exploration of the needs, experiences and preferences of people with MS for integrating treatment information into decision making, in the context of searching on the Internet. This was the aim of our study.