Publications by authors named "Stephen Claxton-Oldfield"

One hundred and forty undergraduate students responded to an online survey investigating their awareness of and beliefs about 12 unusual end-of-life phenomena (EOLP). Three quarters or more of the students had heard about the following EOLP: deathbed visions (75%), after-death communications (84%), near-death experiences (86%), and dying people choosing their time of death (88%). Students were least aware of the phenomena of shapes leaving the body after death (30%) and clocks or watches stopping when someone dies (26%).

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This article makes a case for examining dying person's visions during wakefulness and their dreams during sleep as separate and unique phenomena. The reason being that the mode of experience, for example, being visited by a deceased loved one while awake and conscious vs having a deceased loved one appear in a dream while asleep, may have a different impact on the dying person. A better understanding of the content and impact of waking visions and sleeping dreams, respectively, may be beneficial to both dying persons and their families.

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Seventy-one undergraduate students took part in a study examining their attitudes toward medical assistance in dying (MAiD) for mental illness. More than half (52%) of the students did not know that a change to Canada's MAiD law will allow people with a mental illness as their sole underlying condition to request a medically assisted death next spring (ie, March, 2024). Less than a one-third (28%) of the students agreed/strongly agreed with the statement that MAiD should be offered to people receiving treatment for mental illness (42% disagreed/strongly disagreed), and even less (14%) agreed/strongly agreed with the statement that people waiting for treatment for mental illness should be able to access MAiD (71% disagreed/strongly disagreed).

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11 female hospice palliative care volunteers who had either witnessed and/or had patients or patients' family members tell them about deathbed visions (DBVs) were interviewed about their experiences, perspectives, and responses. The volunteers responded to a series of guiding questions and shared stories about their patients' DBVs. During the interviews, the volunteers talked about, among other things, the impact of DBVs on their patients and themselves, how they responded to their patients' DBVs, and their explanations for them.

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Studies reporting distressing deathbed visions (DBVs) are reviewed to determine whether these experiences are rare, misunderstood, or underreported. Possible explanations for distressing DBVs are explored and possible reasons why distressing DBVs might be underreported are offered. Given the paucity of information on distressing DBVs, more research is needed to determine their prevalence, types, meaning, and impact on dying persons and their families.

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This review article examines the recent (i.e., since the late-1990s) research on deathbed visions (DBVs).

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Medical assistance in dying (MAiD) has been legal in Canada for over 4 years, but little is known about hospice palliative care (HPC) volunteers' attitudes toward MAiD. To address this issue, 48 volunteers from 2 HPC volunteer programs in Atlantic Canada completed an anonymous mail survey examining their attitudes, opinions, experiences, and perceived needs for training around MAiD. The volunteers' responses were generally supportive of MAiD as an end-of-life option and approving of some of the proposed changes to the current MAiD legislation (e.

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Twenty-two members of a nursing home took part in a study examining their experiences with and beliefs about unusual end-of-life phenomena (EOLP). Nearly all the staff members had witnessed and/or been told about residents holding on for someone to arrive or for a specific event to occur before dying (95% and 91%, respectively). Other commonly witnessed/reported EOLP included residents having sudden, unexpected moments of lucidity, sensing or feeling the presence of deceased residents, residents' dreaming about deceased relatives, friends or pets, and deathbed visions.

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The need for training to help healthcare professionals and hospice palliative care volunteers deal with unusual experiences at or around the end of a person's life is an oft-repeated theme in the scientific literature. A pilot study was conducted to examine the effectiveness of a training module designed to improve volunteers' ability to recognize, understand, and respond to unusual end-of-life phenomena (EOLP) in their work with dying patients and their families. Twenty-four volunteers from two community-based hospice palliative care programs completed the 25-item Coping with Unusual End-of-Life Experiences Scale (CUEES) prior to and immediately after attending a lecture and PowerPoint training module.

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Thirty-nine hospice palliative care volunteers completed a survey examining (a) their beliefs about end-of-life phenomena (EOLP), (b) the impact of EOLP on their lives, and (c) their perceived needs for training to respond to them. Forty-nine percent of the volunteers either had personally witnessed an EOLP in their volunteer work and/or had a patient or patient's family member report an EOLP to them. More than half of the volunteers strongly agreed or agreed that EOLP have influenced their religious beliefs and their spirituality in a positive way (53% and 59%, respectively).

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Two studies were conducted to explore how to engage male volunteers in hospice palliative care. Four male hospice palliative care volunteers were interviewed in study 1. The men agreed that a direct approach is best when it comes to recruiting male volunteers, especially a personal story or testimonial.

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The present study examined gender differences in motivations for volunteering for hospice using a German version of the Inventory of Motivations for Hospice Palliative Care Volunteerism (IMHPCV). The IMHPCV was translated into German and back-translated into English following the World Health Organization's guidelines for the translation and adaptation of instruments. In an online survey, 599 female and 127 male hospice volunteers from hospice organizations throughout Germany completed the translated version of the IMHPCV, the Scales of the Attitude Structure of Volunteers as well as questions pertaining to their volunteer experience.

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The objectives of this study were to examine (1) the extent to which hospice palliative care volunteers are involved in program and patient/family advocacy, (2) volunteers' willingness to engage in program and patient/family advocacy, and (3) volunteers' perceived needs for training on how to be an effective advocate. Thirty-four hospice palliative care volunteers responded to the survey developed for this study. The majority of the volunteers surveyed consider themselves advocates for their programs and many of those, who have not already done so, would be willing to promote their program (eg, give a community presentation, talk to local media) if asked.

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A survey was conducted to examine the frequency, acceptability, and functions of humor between hospice palliative care volunteers and their patients, from the volunteers' perspective. Thirty-two volunteers completed the survey, which was developed for this study. The results revealed that most patients and volunteers initiated humor either "often" or "sometimes" in their interactions.

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Hospice palliative care volunteer work--being with dying persons and their often distraught family members--has the potential to take an emotional toll on volunteers. The aim of this review article is to examine the types of stressors hospice palliative care volunteers typically experience in their work and how they cope with them. The results of this literature review suggest that hospice palliative care volunteers do not generally perceive their volunteer work as highly stressful.

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Objective: Terminally ill patients and family caregivers can benefit greatly from the support and care provided by trained hospice palliative care volunteers. The benefits of doing this kind of volunteer work also extend to the volunteers themselves, who often say they receive more than they give from the patients/families they are "privileged" to be with. The purpose of this article is to demonstrate how hospice palliative care volunteerism benefits both the patients and families who utilize this service as well as the volunteers.

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This study examined the motivations for volunteering of hospice volunteers in France. In addition, their levels of death anxiety and empathy were measured and compared with those of French non-hospice volunteers and non-volunteers. Three questionnaires-the Inventory of Motivations for Hospice Palliative Care Volunteerism (IMHPCV), the Templer/McMordie Death Anxiety Scale, and the Interpersonal Reactivity Index-were sent via an Internet link to 2 hospice volunteer associations and to non-hospice volunteers and non-volunteers (only the hospice volunteers received the IMHPCV).

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Two separate studies were conducted to identify perceived barriers and enablers to referrals to community-based hospice palliative care volunteer programs in 2 Atlantic Canadian provinces. In study 1, a physician, home support nurse manager, social worker, and volunteer coordinator (VC) were interviewed. More barriers than enablers were identified.

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In total, 120 British female hospice volunteers completed the NEO five-factor inventory (NEO-FFI) of Costa Jr and McCrae. The NEO-FFI measures the so-called big 5 personality traits of neuroticism, extraversion, openness, agreeableness, and conscientiousness. Compared to both American NEO-FFI norms for adult females and emerging British NEO-FFI norms for adult females, the hospice volunteers scored significantly lower, on average, in neuroticism and significantly higher, on average, in agreeableness and conscientiousness.

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In all, 162 British hospice volunteers completed the Inventory of Motivations for Hospice Palliative Care Volunteerism (IMHPCV) of Claxton-Oldfield, Wasylkiw, Mark, and Claxton-Oldfield.(1) The IMHPCV taps into 5 different categories of motives for becoming a hospice palliative care volunteer: altruism, civic responsibility, leisure, self-promotion, and personal gain. Altruistic motives were the most influential reasons for choosing to join hospice; personal gain motives were the least influential reasons for becoming a hospice volunteer.

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In all, 119 hospice palliative care volunteers from 3 community-based hospice programs completed the Volunteer Retention Questionnaire (VRQ), a 33-item survey designed for this study. The VRQ asks volunteers to rate the importance of each item to their decision to continue volunteering. The items that received the highest mean importance ratings included enjoying the work they do, feeling adequately prepared/trained to perform their role, and learning from their patients' experiences/listening to their patients' life stories.

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Forty-one hospice palliative care volunteers (from 6 community- and 3 hospital-based programs) participated in informal group discussions regarding (1) what aspects of their work provide them with the most (and least) satisfaction; (2) why they continue to volunteer; and (3) why they might stop. In 5 of the 9 programs, volunteers said that feeling appreciated by the patients/families they support gave them great satisfaction. Boundary issues and/or role ambiguities were among the least satisfying aspects of their work, mentioned by volunteers in 4 programs.

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A total of 79 hospice palliative care volunteers from 2 community-based hospice programs responded to a 27-item Boundary Issues Questionnaire that was specifically developed for this study. Volunteers were asked to indicate whether or not they considered each item (eg, "Lend personal belongings to a patient or family," "Agree to be a patient's power of attorney," "Attend/go into a patient's medical appointment") to be something they should not do and to indicate whether or not they have ever done it. On the basis of the volunteers' responses, the authors distinguished between "definite boundary issues" (things volunteers should never do, for example, "Accept money from a patient or family"), "potential boundary issues" (things volunteers should stop and think twice about doing, for example, "Accept a gift from a patient or family"), and "questionable boundary issues" (things volunteers should be aware of doing, for example, "Give your home phone number to a patient or family").

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