Publications by authors named "Sonila Mustafa"
Decision-making in fetal cardiology is fraught with ethical issues yet education in bioethics for trainees is limited or nonexistent. In this innovation report, we describe the development of a fetal cardiology bioethics curriculum designed to address this gap. The curriculum was developed to supplement the core curriculum for cardiology fellows and fetal cardiology subspecialty trainees.
View Article and Find Full Text PDFPurpose: To understand the effectiveness of a nurse-led transition intervention by analyzing qualitative data generated in the context of a clinical trial.
Design & Methods: Qualitative study of a two-session transition intervention conducted by registered nurses at two sites. Adolescents aged 16-17 years with moderate or complex congenital heart disease (CHD) had been randomized to a two-session transition intervention or usual care.
Background: There is little evidence regarding the efficacy of interventions to prepare adolescents with congenital heart disease (CHD) to enter adult care.
Objectives: The goal of this study was to evaluate the impact of a nurse-led transition intervention on lapses between pediatric and adult care.
Methods: A cluster randomized clinical trial was conducted of a nurse-led transition intervention for 16- to 17-year-olds with moderate or complex CHD versus usual care.
Article Synopsis
- The population of adolescents and young adults with congenital heart disease (CHD) is increasing, and there's a need for effective strategies to help them transition to adult healthcare.
- The CHAPTER 2 Study is a clinical trial examining a nurse-led intervention aimed at improving the readiness and knowledge of 16-17 year olds with moderate to complex CHD as they prepare for adult care.
- The focus of this study includes measuring the time taken to transition to adult care, assessing participants' understanding of their condition, and enhancing their self-management and communication skills through personalized sessions.