Paediatric end-of-life care at home.

Background: A terminally ill child should have the possibility to be at home with their family during the end of life. Provision of care from primary care nurses (PCNs) is crucial, but no model exists on how specialised paediatric palliative care teams (SPPCTs) support the PCNs to perform this task.

Aim: To investigate how PCNs evaluated a shared care model between a SPPCT and PCNs in paediatric end-of-life care.