Measurement of mothers' confidence to care for children assisted with tracheostomy technology in family homes.

The purpose of this research was to develop an objective, linear measure of mothers' confidence to care for children assisted with tracheostomy medical technology in their homes. Caregiver confidence is addressed in this research for three technologies, namely, a) trachesotomy, b) tracheostomy and ventilator, and c) BiPAP/CPAP although detailed measurement results are only reported for tracheostomy, and its co-calibration with tracheostomy and ventilator caregiving items. The sample consisted of 53 mothers responding to several caregiver questionnaires based on a caregiving task matrix after content and clinical validation.

Nonequivalent survey consolidation: an example from functional caregiving.

Functional Caregiving (FC) is a construct about mothers caring for children (both old and young) with intellectual disabilities, which is operationally defined by two nonequivalent survey forms, urban and suburban, respectively. The purposes of this research are, first, to generalize school-based achievement test principles to survey methods by equating two nonequivalent survey forms. A second purpose is to expand FC foundations by a) establishing linear measurement properties for new caregiving items, b) replicate a hierarchical item structure across an urban, school-based population, c) consolidate survey forms to establish a calibrated item bank, and d) collect more external construct validity data.

Rasch analysis of a new construct: functional caregiving for adult children with intellectual disabilities.

This research examined empirical evidence for a new construct, Functional Caregiving, which is a theory about mothers' caregiving of their adult children with intellectual disabilities. A sample of 108 biological mothers and primary caregivers rated survey items about their confidence to perform caregiving tasks. Rasch rating scale analysis found 61 items defined an empirical construct with three caregiving levels: Advocacy, Personal Caregiving, and Community.

Development of an instrument measuring family care.

This study developed and evaluated an instrument to measure the quality of care given by family members to a patient in the home. The Family Care Measure consisted of 11 items, each of which was rated on a visual analogue scale. Fifteen registered nurses rated the care given by families of 72 eligible patients for whom the nurses had provided nursing care.